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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 1 hour ago | Replies (388)

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@brandynecole

I just had MRIs done and they found on at my T4. Both my parents had lung cancer, with tumors in that same spot. Everyone I speak to say it's benign, but everything I'm seeing about atypical meningioma is it is neither benign nor malignant, but it is an aggressive tumor. I understand your concerns and fears because this hurry up and wait and see approach is not in my wheelhouse. Both my parents had stage 4 lung cancer at detection, both had a tumor on the T4 vertebrae, both were in agony. I'm in so much pain every day it is a struggle not to take the self checkout, but I remember my son, my reason to keep going and fighting another day. I have Chiari Malformation and have had 2 craniotomies within the last 3.5 years. My life has gone from active and taking care of everyone else to now not even being able to do simple tasks by myself, my son is now the parent to me. My memory is crap, the pain is constant, my inability to be active and independent is all wearing on me. Please remain strong, remain positive (even though so difficult), and keep us updated. I'm glad to have found a forum that is legit to speak up in.

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Replies to "I just had MRIs done and they found on at my T4. Both my parents had..."

@brandynecole, I can imagine the anxiety and fear that seeing your parents with lung cancer adds to your recent diagnosis. Not 2 cancers are the same, and like you said, meningioma is neither benign nor malignant.

Clearly, you are someone who wants to take action. Rather than "watch and wait", I prefer to call this treatment option "active surveillance". It is, in my opinion, more accurate. You and your team aren't just sitting around waiting for the other shoe to drop, but rather actively monitoring, ready to action when necessary, but not before or unnecessarily. Does that make sense? Helpful?