Yes! Over and over. It’s been going on for over 4 years now.
He falls with no use of legs and has uncontrollable shakes and talks gibberish. By the time we get to the ER all symptoms are gone. At first they just sent him home. He’s been to many doctors and have had MANY tests.
About a year ago at ER they looked at his liver enzymes AGAIN. This time they were high enough for us to see a liver Dr. It’s been a Long journey but he now has been diagnosed with an auto immune disease called PSC.
He has liver cirrhosis because of this and now has aged out for a transplant! I had taken videos of when he was having his “episodes” but liver specialist says it’s not what caused this. He is getting weaker, loosing weight and I’m scared. There are no cures for this PSC but some drugs ( for PBC) that can help some symptoms.
He takes so many pills (13morning & 9 evening) and is having “brain fog” I have to do a lot of things for him. He also sleeps ALOT! This is not an answer for you but thought I’d give you a rundown of his journey!
P.S. he’ll be seeing another neurologist this week. He has essential tremors that are now debilitating. Hopefully, they can at least help with this.