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Diagnosing small bowel NETs with carcinoid syndrome
Neuroendocrine Tumors (NETs) | Last Active: Mar 19, 2025 | Replies (19)Comment receiving replies
Thanks! A normal life! That's great! Your CT was negative with tumors in SI causing a partial blockage? Did you have a 24-hour 5-HIAA urine test? Or maybe that's just useful for liver metastasis.
Replies to "Thanks! A normal life! That's great! Your CT was negative with tumors in SI causing a..."
"The Cancer Code" is a good book for general knowledge on cancer
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Yes I had all those test including 5-H1AA urine test. A liver biopsy determined it was a NET for sure. The dotonate PETScan shows the radiologist where all the NETs are. Remember in about 60% of cases it's already spread by the time you find one. Its important to get a NET Specialist /oncologist because they will help determine treatment and insurance. I don't think insurance will cover surgery before Lanreotide. I said "normal life" b/c my day to day is pretty normal but... I'll have MRI every three months for the rest of my life and eventually cancer grows.🙏