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Who are the best pulmonologists for MAC/bronchiectasis in Texas?
MAC & Bronchiectasis | Last Active: Mar 17 6:34pm | Replies (20)Comment receiving replies
Hello ninjanana I also went to NJH in Oct. 2023 and had Dr. L as the lead doctor. It was reconfirmed that I have BE and then diagnosed while there during the visit that I had a small MAI load and Dr. L did not prescribe the antibiotic medications he did the "watchful waiting". I had not had sputum testing suggested or done by my local pulmonologist to know or find out if I had a MAC infection before going to NJH and that was part of the reason I went up to NJH. I realized after seeing the local pulmonologist two times that I needed the NJH expertise.
When were you there for your first visit? Were you prescribed the Azithromycin on your first visit or a follow-up visit?
I am curious. How long were you on or how long are you on the Azithromycin and how long was it suggested that you be on the Azithromycin for inflammation?
From what I read, if I read it correctly, you are not on any other antibiotic with the Azithromycin? Are your C Scans showing less inflammation? Were you told to send in sputum for testing at NJH after the visit or now?
Barbara
Replies to "Hello ninjanana I also went to NJH in Oct. 2023 and had Dr. L as the..."
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Hi Barbara, I had a very bad URI in August of 2021 (negative for Covid) and was left with chronic cough, intermittent achiness and low grade fevers for months. I finally got a diagnosis of BE with H. Influenza by my local pulmonologist in May of 2022 but by then, because of several interactions, had lost all faith in this pulmonologist. I first saw Dr. Lommatszch at NJH in August of 2022 and have returned once a year for a check up since then. Dr. L did not start my Azithromycin until Spring of 2023 when I had two back to back URIs. My CT scan shows mild improvement at each yearly visit. He talked about keeping me on the Azithromycin for a couple of years. I have been so healthy since my last visit with him that I stopped taking it last month (my decision) and will see how I do. If I don't have to take it I would prefer not to, only because I am trying to keep my gut biome super healthy because I have a strong family history of dementia on both sides. The only time I take antibiotics is when I have an URI, either Levofloxacin or Azithromycin. I have not been told to send in sputum to NJH, I do a sputum test at my yearly check ups and they have been negative. Hope this helps! Dr. L is amazing. Nancy