Replies to Ha ha same same . Haemoglobin dropped suddenly enough to think maybe I was bleeding. Thanks…

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Polymyalgia Rheumatica (PMR) | Last Active: Mar 21 4:20pm | Replies (38)

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@maye

Ha ha same same . Haemoglobin dropped suddenly enough to think maybe I was bleeding.

Thanks @tsc I’m great now, in remission & have been for last 3 months or so . No PMR / GCA symptoms and inflammation markers and Haemoglobin normalised .

I’ve had three & half months on pred , along side immediate start Actemera weekly subcutaneous (4 half mths so far ) Finished pred a month ago.

I’m grateful to have had such a good PMR / GCA treatment run so far . Attentive and knowledgeable Rheumatologist too.
Still I’m always hyper vigilant for any emerging symptoms and / or any long term side effects of pred and / or Actemera.

And how are you @tsc ? Returning to pre PMR/ GCA health I’m hoping.

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Replies to "Ha ha same same . Haemoglobin dropped suddenly enough to think maybe I was bleeding. Thanks..."

Teri | @tsc | Mar 18 4:47pm

Hi @maye,
I was on prednisone for a year and a half, off it a year, and then I relapsed. Back on prednisone, almost for a year. Now I'm down to 2 mg.
The second time with GCA, my symptoms were somewhat different from the first go round so I didn't recognize it at first.
Are you the first one in your family to get it?
My maternal Aunt had it, and my mother-in-law as well!
I'm glad you've had a quick recovery.
All the Best!

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