← Return to The Bronchiectasis Care Center Network --33 centers!!
DiscussionThe Bronchiectasis Care Center Network --33 centers!!
MAC & Bronchiectasis | Last Active: 10 hours ago | Replies (18)Comment receiving replies
Replies to "@becleartoday Thank Linda. I may have misunderstood prior information, but it was my understanding that the..."
I received a very prompt email back from those who are overseeing the centers. The Standards of Care are being finalized and will be made available to everyone once they are published. The bronchiectasis guidelines are being worked on separately.
Hope this is helpful,
Linda
Your point is well taken. I too thought there would be standards of care issued with the first round ofapproved centers. I don’t think they’re available yet. Once they are, I would like to believe that they will be made public and that we could then share them with our local doctor. I will try to confirm. The people who are overseeing the network at the Bronchiectasis and NTM Association are probably tired of seeing a Monday email from me 🙂 but here goes. Will get back to you. Linda