@billkmed
On your Decipher test, I got mine back with a low risk. I know many get numbers but I am not familiar with what the numbers mean. Is your number a low, intermediate or high risk? That test per my R/Os (I had two opinions done also) is key to treatment plans as has a better diagnoses of aggressiveness of cancer.
My two consultations came back with same diagnosis and treatment plan. So I was lucky. I have read many posts who get different opinions. It is why the Gleason Scores can be interpreted differently and a lot of us get the Decipher to more accurately define it. Are you in Washington State. There are some excellent proton cancer treatments centers in California.
What it comes down to is what you are comfortable and what diagnoses you feel is more accurate. That goes for the treatments also. Most of us get multiple treatment options to chose from. But since you had such a difference in diagnosis and treatments I would (if me) do a 3rd opinion.
I know I had my second opinion from Mayo Jacksonville done at UFHPTI. It was done with having my medical information provided to UFHPTI. There was no difference in diagnosis but was able to get proton radiation at UFHPTI versus only photon available at Mayo Jacksonville.
Mayo Jacksonville did PSA tests, Urological exams, MRS with contrast, biopsies (MRI Fusion), bone scan and Decipher test. The only additional test that UFHPTI wanted to do was PSMA which I had done at Shands.
I know having this occur is a real headache with having to deal with the prostate cancer. But hang in there!
If I was you and had two different opinions I would seek a 3rd. Most of the time you can get another opinion by providing your medical informatino to the other facility. Can you contact a major facility like Mayo, Cleveland Clinic, John Hopkins, etc. about a 3rd opinion?
Thanks - if I remember correctly decipher scoring is 0-100 so I’m intermediate there as well.