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Siblings don’t seem to care

Caregivers: Dementia | Last Active: 1 day ago | Replies (40)

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@wctdoc1943

I do understand. My wife has MCI, probably transitioning into the early stages of dementia, so the demands on me are nowhere near yours, but I am a retired internist/geriatric physician who made home visits on disabled patients (many with advanced dementia), and I observed all the things you mention. It is a thankless job but no one will ever do it as well as dedicated family member. Yet, there comes a time when it is more than you can provide. I think the best thing you can do after moving to institutional care is to remain a dedicated advocate for dignified care. Patients with advanced dementia who lack an advocate are often the neglected ones. I've yet to see a facility that had adequate staffing.

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Replies to "I do understand. My wife has MCI, probably transitioning into the early stages of dementia, so..."

Yes, then you know. I was also the sole caregiver for my older cousin (most people thought she was my mom. She was an only child.) that I had to place in Memory Care, before her death several years ago. (Mixed Vascular Dementia/Alz). I was very fortunate to find a small, family operated facility in a rural area where most staff had been there for years. They were incredible and quite unique. They have changed ownership though and I don’t know if it would be a good fit for my parents now, since my dad will need skilled nursing and not AL. I’m exploring all options.

Best of luck to you on your journey as caregiver.