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Side effects of Letrozole after taking 2yrs
Breast Cancer | Last Active: Mar 18 4:33pm | Replies (17)Comment receiving replies
the first time I was diagnosed I had just turned 50. this last time I had almost 19 years inbetween being diagnosed again. I take letrozole 2.5 - it's a low dose, still does what it has to, and has less (for me) side effects. When the drs. told me I didn't have to take it anymore (after about 12 yrs) I felt I should keep taking it, but didn't. I am kind of positive that stopping the drug caused the cancer to come back. But that's just my opinion/gut feeling. Good luck, ask lots of questions, you can never learn too much and always be your own advocate.
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Thanks so much for sharing! You are an inspiration for me as I try to tell myself each day that the Letrozole is helping me but some days hard and only two years in at 59 yrs I guess I have a new norm. I had invasive lobular cancer and sounds like protocol now is 10 yrs as lobular unfortunately is easy to miss on any imaging (MRI or CT scan sounds like the best based on lobular experts) and often reoccurs much later than ductal. How would we know if we gain an intolerance to letrozole -early detection is all we have so may I ask how after almost 19 yrs your reoccurrence was found - mammogram? I had a lumpectomy and after learning more about lobular over the last 2.5 yrs I sometimes wish I had a mastectomy but I'm trying not to look back. I do take a good multivitamin, and 2000 IU Vit D. Since I have osteoporosis I am now on Zometa (have second infusion in April) which I feel might add to fatigue. Thanks again for all of you sharing. oxoxoxo