← Return to Stage IV Adenosquamous pancreatic ca: finished SBRT, what's next?

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@dalegantous

Hi @mnewland99, thank you so much for your reply! Very encouraging and that is so helpful. I think the side effects are from the belly tumour where they did use SBRT but not MRI - they targeted the tumour with a CT machine. And it's so close to my skin, it did look a bit burned. It continues to hurt but controllable with tylenol. Diarrhea has subsided thank God!

I've decided I'm going to jump back into Gemcitabene/Abraxane, and see what my CA19-9 does and what the CT scans show in a couple of months. Like you I am hoping that the radiation killed my metastases, I sure hope yours are done and done!

PS: Thanks for the tip about magnetic eyelashes, I am going to give them a try for special occasions. I'm using Benefit eyebrow pens to paint on my eyebrows, they work pretty well!

And, it's been 5 weeks since my last chemo, and indeed my hair HAS started growing again! I have a very very short brushcut - and it's pretty much all white so not exactly lovely, but I can dream of having hair again. So I am going to try the Paxman cold cap when I go back into chemo in 2 weeks, and see if I can stand it, and see if it actually lets my hair continue to grow. Glad to hear that yours is growing back, it's all about hope isn't it??!!

Anyway thank you so much @mnewland99, I find all your posts very inspiring.

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Replies to "Hi @mnewland99, thank you so much for your reply! Very encouraging and that is so helpful...."

The burning of skin sounds unusual. How many treatments did you receive? The pain around my liver just went away, finally so I’m thinking radiation in my body is gone now. I’ll see how my numbers go after my next session or in 2 weeks. 3 months after my treatment, my new oncologist gave me the Gaurdant testing and then retested my biopsy liver tissue from 2023 as he said there were new technologies that might find mutations that they couldn’t find before. However, all testing came back negative. We’ll see and I guess the best thing I can do is to try and eat right and exercise and TRY to avoid stress. I’m praying for the best for you and all of us.