Anyone familiar with Nerve Fresh?I saw an ad (quite lengthy for this product which is purported to reverse and heal nerve damage. It is quite expensive and bears the hallmarks of "snake oil", so not expecting much. Decided to try as there was a 60 day return and refund policy. I checked with a PCP who looked at the ingredients but was unfamiliar with it. I wanted to make sure it would do no harm.
If medication have not been approved by FDA they are likely scam. I have an SCS for pain foot neuropathy. OTC lidocaine spray or roll on for feet and legs also helped before I got SCS.
Hi John
I’ve been researching and realised I’ve presented to my local clinic with neuropathy symptoms for about 5 years. I keep records of all medical appointments so I have been able to document and discuss the history with my doctor.
Such symptoms in a younger person may have been investigated further but because of old injuries (broken bones from car accidents) and being in my 60s many symptoms have been written off as aging.
I am now in my 70s.
My journey of detoxing from B6 is just beginning and symptoms have worsened (which I have read is common).
I have a doctor who is engaged and I am having monthly blood tests and a discussion about changes. I am keeping a daily diary.
I’m taking low dose magnesium, B12, D3, ALA.
Just started physio (hydrotherapy- moving and stretching) I don’t have enough data to comment on that yet.
Pool therapy by a physical therapist is amazing. The hospital books my appointment first thing in the morning and turns up the heat to 98. They turn it down when I get in. Everything you read says heat makes your neuropathy worse but for me if I get in cold water. It hurts really bad.
What was the reasoning
Your GP used for removing
Statins out of your drug regimen? I take statins recently started about a year ago. I already had peripheral neuropathy, numbness , but no pain. I am not convinced statins are what I need even though
The drug has dropped my LDL and also my HDL.
Pool therapy by a physical therapist is amazing. The hospital books my appointment first thing in the morning and turns up the heat to 98. They turn it down when I get in. Everything you read says heat makes your neuropathy worse but for me if I get in cold water. It hurts really bad.
For all hydrotherapy the physios and doctors say temperature must be above 27C (we keep ours at 29.5 C all year round) It allows your muscles to move smoothly without tensing in the cold 👍. 37 sounds very warm. I doubt I could get ours that hot even if I tried. How big is the pool?
(85-year old male with PN.) I am quite aware of the many "magic cures" offered on the Internet, made especially attractive by men in white coats proclaiming they have found a cure. However, having just endured the 30-minute hook presentation by a doctor today and seeing numerous positive reviews by people using the product (likely fake), I'm most interested in responses by this forum because we've all been through disappointing "cures". The product is called CAPSAICIN, and the shill boasts that their product, boosted by curcumin, ALA, and root extract, is a cure. Has anyone paid the $35 to try it?
(85-year old male with PN.) I am quite aware of the many "magic cures" offered on the Internet, made especially attractive by men in white coats proclaiming they have found a cure. However, having just endured the 30-minute hook presentation by a doctor today and seeing numerous positive reviews by people using the product (likely fake), I'm most interested in responses by this forum because we've all been through disappointing "cures". The product is called CAPSAICIN, and the shill boasts that their product, boosted by curcumin, ALA, and root extract, is a cure. Has anyone paid the $35 to try it?
(85-year old male with PN.) I am quite aware of the many "magic cures" offered on the Internet, made especially attractive by men in white coats proclaiming they have found a cure. However, having just endured the 30-minute hook presentation by a doctor today and seeing numerous positive reviews by people using the product (likely fake), I'm most interested in responses by this forum because we've all been through disappointing "cures". The product is called CAPSAICIN, and the shill boasts that their product, boosted by curcumin, ALA, and root extract, is a cure. Has anyone paid the $35 to try it?
(85-year old male with PN.) I am quite aware of the many "magic cures" offered on the Internet, made especially attractive by men in white coats proclaiming they have found a cure. However, having just endured the 30-minute hook presentation by a doctor today and seeing numerous positive reviews by people using the product (likely fake), I'm most interested in responses by this forum because we've all been through disappointing "cures". The product is called CAPSAICIN, and the shill boasts that their product, boosted by curcumin, ALA, and root extract, is a cure. Has anyone paid the $35 to try it?
Buyer beware goes the saying. Some people tolerate topical creams or liquids well and might help some. I find this type of product to be an irritant and although not the same brand or name only gave me a more intense burning sensation. Snake oils have always been peddled and will continue to be as long as illnesses attack us and we are desperate to find a cure. There is a presentation by the PN foundation on April 9 that hopefully will provide us more info on what is being pursued to help, I hope, on this matter.
Buyer beware goes the saying. Some people tolerate topical creams or liquids well and might help some. I find this type of product to be an irritant and although not the same brand or name only gave me a more intense burning sensation. Snake oils have always been peddled and will continue to be as long as illnesses attack us and we are desperate to find a cure. There is a presentation by the PN foundation on April 9 that hopefully will provide us more info on what is being pursued to help, I hope, on this matter.
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Anyone familiar with Nerve Fresh?I saw an ad (quite lengthy for this product which is purported to reverse and heal nerve damage. It is quite expensive and bears the hallmarks of "snake oil", so not expecting much. Decided to try as there was a 60 day return and refund policy. I checked with a PCP who looked at the ingredients but was unfamiliar with it. I wanted to make sure it would do no harm.
If medication have not been approved by FDA they are likely scam. I have an SCS for pain foot neuropathy. OTC lidocaine spray or roll on for feet and legs also helped before I got SCS.
Pool therapy by a physical therapist is amazing. The hospital books my appointment first thing in the morning and turns up the heat to 98. They turn it down when I get in. Everything you read says heat makes your neuropathy worse but for me if I get in cold water. It hurts really bad.
What was the reasoning
Your GP used for removing
Statins out of your drug regimen? I take statins recently started about a year ago. I already had peripheral neuropathy, numbness , but no pain. I am not convinced statins are what I need even though
The drug has dropped my LDL and also my HDL.
For all hydrotherapy the physios and doctors say temperature must be above 27C (we keep ours at 29.5 C all year round) It allows your muscles to move smoothly without tensing in the cold 👍. 37 sounds very warm. I doubt I could get ours that hot even if I tried. How big is the pool?
(85-year old male with PN.) I am quite aware of the many "magic cures" offered on the Internet, made especially attractive by men in white coats proclaiming they have found a cure. However, having just endured the 30-minute hook presentation by a doctor today and seeing numerous positive reviews by people using the product (likely fake), I'm most interested in responses by this forum because we've all been through disappointing "cures". The product is called CAPSAICIN, and the shill boasts that their product, boosted by curcumin, ALA, and root extract, is a cure. Has anyone paid the $35 to try it?
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1 ReactionDon't fall for it, there is no cure for neuropathy, period. It's the hand we were all dealt unfortunately.
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3 ReactionsNot sure it's a miracle cure but it may provide some relief with the caveat, probably won't help everyone - This is a description of the drug with it's many names -
https://www.mayoclinic.org/drugs-supplements/capsaicin-topical-route/description/drg-20062561
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1 ReactionBuyer beware goes the saying. Some people tolerate topical creams or liquids well and might help some. I find this type of product to be an irritant and although not the same brand or name only gave me a more intense burning sensation. Snake oils have always been peddled and will continue to be as long as illnesses attack us and we are desperate to find a cure. There is a presentation by the PN foundation on April 9 that hopefully will provide us more info on what is being pursued to help, I hope, on this matter.
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1 ReactionI thought I would share the link to the April 9th upcoming Foundation for Peripheral Neuropathy webinar.
-- Emerging Options for Neuropathic Pain Management: https://www.foundationforpn.org/events/emerging-options-for-neuropathic-pain-management/
It will eventually be placed on their YouTube channel with their previous webinars - https://www.youtube.com/@foundationforperipheralneu4122