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New - Lightheadedness with Spinal Stenosis

Spine Health | Last Active: Mar 17 7:02pm | Replies (13)

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@juljul

That is an amazing story Jennifer. I’m glad you found someone to help at Mayo. Your fortitude is astounding. Three months into this and I was really struggling.

3 days ago my left leg started not working (floppy knee and foot) and the dizziness got so bad I blacked out. I called an ambulance and ended up on the ER.

To make a long story short I had emergency acdf surgery on C5 to C7 yesterday. Almost 24 hrs later and I feel relief of symptoms, though am cautious about the dizziness returning once I’m up and about more. The surgeon said full recovery and symptom relief may take a few weeks.
Having my post op discussion today and being discharged.

This was a wild journey. The neurologist and ed docs were pretty dismissive and thought I should be discharged for more pt since the cervical mri showed issues but none significant. A neurosurgeon showed up and figured everything out - a couple of different issues actually compounding each other.

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Replies to "That is an amazing story Jennifer. I’m glad you found someone to help at Mayo. Your..."

@juljul You have quite a story too. I am glad you had a good neurosurgeon who figured it out. I am glad your symptoms are better. That feels great does it? What you're left with now is healing pain. Think positive. The dizziness may have been cured with your surgery. When you do get to have physical therapy, you can discuss the past dizziness and muscle spasms and have the PT assess this. Some patients who have thoracic outlet syndrome (which I have) can pass out if they turn their head. That doesn't happen to me, but TOS can be caused by a whiplash and is often missed by doctors unless they are trained in this condition. Undoubtedly, your surgery will cause enough inflammation that an assessment for TOS would have to wait.

For now, just be careful. You don't want to fall during your recovery and there may be dizziness related to having surgery. I think it's hard to be a patient when doctors keep missing the diagnosis. That happened to you too, and I'm sure you can write your own story about that. You've learned a valuable lesson too about advocating for yourself and how to connect to the details that were missed. I'm sorry you were dismissed. I got that too. We're both wiser now.