A follow up to my earlier post: We saw the neurologist (P.A. actually) and my husband had a through exam that lasted about 1/1/2 hrs. That was helpful, to be sure, and what was also of great benefit was the large packet of information I was given. In simple terms, the stages, prognosis, and methods of dealing with significant changes were spelled out in ways that were both helpful and encouraging. Besides this group, the neurologist provided more information and support than I've found anywhere else. Friends are wonderful and supportive but they know even less about this condition than I do. I depend on them but I need professional help too and now I feel I have it. When in doubt, consult a sympathetic, competent neurologist. My understanding is that they're not all the same. If you don't find what suits your needs, seek a second opinion and make a change if you have to. Our neurologist brought up second opinions and had absolutely no problem with it.