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So close and yet so far away – tapering to 1 mg
Polymyalgia Rheumatica (PMR) | Last Active: Mar 19 8:08pm | Replies (18)Comment receiving replies
It is something akin to tightrope walking. You can fall off at any stage of tapering and you need to be careful during the beginning stages, in the middle stages and when you are close to the end. You need to go at your own pace and it isn't a race. Your goal is to taper off but when that happens, only you can decide. You have to be more careful near the end of the tightrope because you will be very fatigued and your muscles will ache but that is likely because of how far you have come.
I'm not sure how much help your doctor will be near the end of tightrope but maybe they can lend you a hand. If it isn't PMR, your hormones, including your cortisol level, need to regain some balance too.
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I had an uncomfortable and worrisome few days after the taper to 1 mg. I was able to make it through tai chi class yesterday, which helped take the edge off a little bit. Last night, after writing the forum, I had a cup of turmeric ginger tea, and was surprised to feel some relief, which enabled me to do a tiny bit of stretching. This morning I felt noticeable improvement.
My PCP situation is weird. My last one had one foot out the door all year. The enormous practice I go to, that is swallowing up the state, assigned me a new PCP in January, telling me in advance that I had to accept whoever I was assigned or leave the practice. I haven’t met the guy yet, I’ve just messaged him over the patient portal about tapering and refills so far. My yearly exam is in early May.
Anyway, for that reason I need to consult him before I start making changes to my dose, as I don’t want to start off on the wrong foot.
So if I continue to see at least some improvement I’m leaning towards waiting a few more days, if not I’ll have to ask about either going back to 2mg or up to 1.5mg, which would be my preference.