Sick and tired of being sick and tired.....

Posted by sickandtired82 @sickandtired82, Mar 12 10:34am

I just need to vent. It's hard when you have nobody to talk to or people tell you "it's all in your head". I am 42 years old and sick.....For over 10 years I have been dealing with so many health issues and can't seem to find the right answers. Seems having government insurance doesn't get you answers at all. I have been desperate for answers for so long, I ended up giving up after feeling like I was in a dead end circle. But, I am so tired of living this way and I know this is not a normal way to live, so I don't want to give up. I want to keep going, but, don't know where to begin. I have seen different rheumatologist, neurologist, primary doctors, etc. The first rheumatologist runs tests and diagnoses me with several different arthritis' and puts me on several medications (not to mention a chemo treatment that made me sicker). Kept me on all of the medications for years, even with me continuously telling him that they were not helping, I didn't feel any better at all. Decided to see a new Rheumatologist, only to be told I was misdiagnosed by the previous one and I don't have any types of arthritis and "nothing"' is wrong. Same thing happened with the Neurologist, first one tells me I have a brain aneurysm, get a second opinion and that one tells me I don't have an aneurysm. Several neurologist, diagnoses and medications, still feel the same. The most recent neurologist tells me I have every symptom of MS, yet, can't treat me for it or diagnose me, because I don't have MS lesions on my brain. (was that so called aneurysm seen on my scan by the first neurologist an MS lesion).
It's never ending and still no answers. I don't even remember what it like to feel "normal". I have been so desperate for answers for so long. I just want to feel somewhat 'normal" and be able to enjoy this short life we have. I miss being able to get up and live a normal life and enjoy the day. I miss being able to get up and go to work. I miss being able to run around the yard playing with my kids. I NEED ANSWERS AND CAN'T GET THEM. Thank you so much for letting me vent, there's so much more I could have written, but, it would have been so much longer than what I have already typed.

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@itchyd

If I read your message correctly, you say to take 50,000 (fifty thousand) International Units (IU) of Vitamin D3 per day?
From what Ive read and been told by my GP, the
most commonly Recommended Daily Allowance (RDA) for VD3 is 4,000 IU/day. From what I've read and heard, VD3 can be toxic if taken at that level for sustained periods.

Fasting: You don't mention any initial criteria to determine whether fasting for such durations is safe. I'd want to get a doc's opinion before starving myself for up to a week's time on a regular basis. Does someone with diabetes want to stop feeding for such lengthy periods?

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The official medical establishment rda for d3 is 800iu a day. The toxicity of taking too much d3 is a scare tactic started by the drug industry to keep people sick from not getting enough. D3 is key in having a healthy immune system and preventing cancer and 80/90% of people are deficient in it especially in the nortern hemisphere. Pharmaceutical companies control the medical education system in this country and the governing boards so not following their protocols will get hospitals/doctors licenses pulled as happened during covid if you were paying attention. Treating the symptons and not the root cause is how the whole system is designed. D3 deficiencies from not enough time in the sun, poor absorption and poor food quality all contribute. If you have a serious health problem 40 to 50 thousand iu's a day is the amount needed to stop/and begin to reverse the health problem such as auto immune diseases and cancer. The person I replied to had systemic inflammation throughout the body. Building up the immune system is best way to begin to reverse the symptons and it all begins with D3. You need K2 for D3 and Magnesium and Zinc as well. Most people are deficient in all of them and they all depend on each other to work properly. People have been fasting for centuries not only for religious reasons but health related reasons as well. Intermittent fasting is relatively easy were you consume your food in a 8 or 6 hour window and only water, tea or coffee the rest of the time with no sweetners or cream. I started doing this a few years ago and it has been very beneficial. I do a prolonged fast once a year and it is a eye opening experience after which I feel rejuvenated. I did 5 days last year and had my glucose checked at the beginning and end. Started in the low 90's and ended in the low 70's. I am not currently on any meds and in my 60's but type 2 diabetes is prevalent in my family. If your a diabetic that would certainly be a problem especially for type 1. Type 2 might be able to do Intermittent but not prolonged. If you go to the references I gave they are the best sources I have come across to date in 17 years of studying health and diet.

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From what I understand you get different diagnosis with different recommendations with a variety of options from assorted doctors and specialists. It’s always to your advantage to get second opinions. But not if none of them are helping you. You want answers not more questions. Test results that makes sense not up to interpretation. It’s crappy feeling ill. Trying to do the right thing only to get a run around that is frustrating. Patience and understanding is needed. This should be handled by a multiple of different doctors and specialists like they have at Mayo. It takes all day but it’s a very effective way in unison collectively to over see your care.

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I'm so very sorry to hear this!! I had been a nurse 4 41yrs but but became very disenchanted with the medical field while still in school. I understand your frustraion!! I started to use a concierge service...out of pocket expense is 150$ a month. I feel so blessed to afford it. It's called MDVIP. My pcp spends 45 min or more with me, coordinates my care with other Dr's she's great!! I wish you the very best!! Hugs 2 you!!

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@trfire

The official medical establishment rda for d3 is 800iu a day. The toxicity of taking too much d3 is a scare tactic started by the drug industry to keep people sick from not getting enough. D3 is key in having a healthy immune system and preventing cancer and 80/90% of people are deficient in it especially in the nortern hemisphere. Pharmaceutical companies control the medical education system in this country and the governing boards so not following their protocols will get hospitals/doctors licenses pulled as happened during covid if you were paying attention. Treating the symptons and not the root cause is how the whole system is designed. D3 deficiencies from not enough time in the sun, poor absorption and poor food quality all contribute. If you have a serious health problem 40 to 50 thousand iu's a day is the amount needed to stop/and begin to reverse the health problem such as auto immune diseases and cancer. The person I replied to had systemic inflammation throughout the body. Building up the immune system is best way to begin to reverse the symptons and it all begins with D3. You need K2 for D3 and Magnesium and Zinc as well. Most people are deficient in all of them and they all depend on each other to work properly. People have been fasting for centuries not only for religious reasons but health related reasons as well. Intermittent fasting is relatively easy were you consume your food in a 8 or 6 hour window and only water, tea or coffee the rest of the time with no sweetners or cream. I started doing this a few years ago and it has been very beneficial. I do a prolonged fast once a year and it is a eye opening experience after which I feel rejuvenated. I did 5 days last year and had my glucose checked at the beginning and end. Started in the low 90's and ended in the low 70's. I am not currently on any meds and in my 60's but type 2 diabetes is prevalent in my family. If your a diabetic that would certainly be a problem especially for type 1. Type 2 might be able to do Intermittent but not prolonged. If you go to the references I gave they are the best sources I have come across to date in 17 years of studying health and diet.

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You qualify your advocacy for large doses of VD3 with the caveat that it's for people with "a serious health problem". I tend to agree with you here. I had Rickets-level vitamin D concentrations when I was a chronic alcoholic and was prescribed 100,000 IU/week for several months to crawl out of the mud. I recovered from those severe deficiencies and now take a maintenance dose of 3,000 IU/day, which keeps me in the low end of "normal range".

Fasting: My latest A1C was 5.8 which puts my blood glucose inventory in pre-diabetes territory for the first time in my life (I'm pushing 68 yo). I need to shed about 15 lbs. and am trying to eat less and exercise more.
I tried a 3 day fast once a long time ago when I was a kid. I don't know why they call it a "fast". Time crept by at a glacial pace the whole time I was sans food. Should call it "slowing", not "fasting".
Good talking with you.

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@itchyd

You qualify your advocacy for large doses of VD3 with the caveat that it's for people with "a serious health problem". I tend to agree with you here. I had Rickets-level vitamin D concentrations when I was a chronic alcoholic and was prescribed 100,000 IU/week for several months to crawl out of the mud. I recovered from those severe deficiencies and now take a maintenance dose of 3,000 IU/day, which keeps me in the low end of "normal range".

Fasting: My latest A1C was 5.8 which puts my blood glucose inventory in pre-diabetes territory for the first time in my life (I'm pushing 68 yo). I need to shed about 15 lbs. and am trying to eat less and exercise more.
I tried a 3 day fast once a long time ago when I was a kid. I don't know why they call it a "fast". Time crept by at a glacial pace the whole time I was sans food. Should call it "slowing", not "fasting".
Good talking with you.

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Interesting, a few years ago I was needing to lose another 10- 15 lbs and my brother who is 2 years older was diagnosed type 2 like both my parents and he was maybe 10 -15lbs overweight. By eating better and lifting some weights but no cardio to get to that 10-15 lbs needed when I looked into intermittent fasting and 6 to 8 weeks later I lost that 10lbs. I didn’t always eat as good as I should've either. Decreasing your insulin resistance is key and the 16 to 18 hrs of not eating helps that even if you don't eat great. Having said that carbs, grains, starches, fried foods/seed oils all increase insulin resistance. I have cheat days but eat good most days. Supplement with vitamins/minerals to fill the holes in the diet. Drinking, taking drugs/medications, eating processed foods which is like 80% of food in stores all deplete these in the body. The soil the real food is grown in also has been depleted so it is hard to get the needed amounts. Then you have the synthetic vitamins that are used in supplements so it isn't easy to get everything needed. Nice talking to you

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@trfire

Interesting, a few years ago I was needing to lose another 10- 15 lbs and my brother who is 2 years older was diagnosed type 2 like both my parents and he was maybe 10 -15lbs overweight. By eating better and lifting some weights but no cardio to get to that 10-15 lbs needed when I looked into intermittent fasting and 6 to 8 weeks later I lost that 10lbs. I didn’t always eat as good as I should've either. Decreasing your insulin resistance is key and the 16 to 18 hrs of not eating helps that even if you don't eat great. Having said that carbs, grains, starches, fried foods/seed oils all increase insulin resistance. I have cheat days but eat good most days. Supplement with vitamins/minerals to fill the holes in the diet. Drinking, taking drugs/medications, eating processed foods which is like 80% of food in stores all deplete these in the body. The soil the real food is grown in also has been depleted so it is hard to get the needed amounts. Then you have the synthetic vitamins that are used in supplements so it isn't easy to get everything needed. Nice talking to you

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I typically eat breakfast around 8 A.M., supper about 6 P.M. and nothing else in between. So, I go approx. 10 hours between morning and evening meals and then about 14 hours overnite.
I don't like to eat any earlier if I can avoid it. I suppose I could wait until 10-11 A.M. to eat breakfast and that would stretch my overnite fast to 16-17 hours.
But, I think my biggest problem is I'm a carboholic. I love bread and rice. I don't booze it anymore (dry since Spring of 2013), so there's that.
Also, I didn't fast before my last A1C test and, even though the doc said I didn't need to, I'm suspicious. That was the first time I've had blood drawn after eating and the first time my blood sugar's been that out of whack. Dunno.

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@itchyd

I typically eat breakfast around 8 A.M., supper about 6 P.M. and nothing else in between. So, I go approx. 10 hours between morning and evening meals and then about 14 hours overnite.
I don't like to eat any earlier if I can avoid it. I suppose I could wait until 10-11 A.M. to eat breakfast and that would stretch my overnite fast to 16-17 hours.
But, I think my biggest problem is I'm a carboholic. I love bread and rice. I don't booze it anymore (dry since Spring of 2013), so there's that.
Also, I didn't fast before my last A1C test and, even though the doc said I didn't need to, I'm suspicious. That was the first time I've had blood drawn after eating and the first time my blood sugar's been that out of whack. Dunno.

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Carbs/starches will spike your insulin faster than sugar. One way to smooth out the spikes is to eat your proteins first. If your borderline diabetic and don't change anything in what, how or when you eat it is just a matter of time. Vitamin B1 plays a important role in regulating blood sugar so that might help also.

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@trfire

Hi, applaud you for hanging in there for so long and also for making the decision to stop all medications if they weren't helping. I will try to stay off my soap box but it sounds like most of your symptoms could be helped or corrected by vitamins and minerals which is actually the root cause of a majority of health problems. Unfortunately there isn't as much money in those treatments. Most people are deficient in order of Importance D3, Magnesium, Zinc, Potassium and Omega 3 fatty acids. I have spent considerable time the past 17 years on health/nutrition and your story is becoming more common unfortunately. If you don't mind I am going to tell you what I would do given these symptoms and give a reference for additional info. I would stop eating all grains, sugar/carbs except those from vegetables and anything with seed oils in it. Stick with grass fed/finshed red meat, organic chicken/pasture raised chicken eggs, salmon/cod from Alaskan waters, vegetables especially cruciferous and sautéed in coconut,olive or avocado oil. I would take 50, 000 iu's a day of D3 and enough K2/Mk7 to go with it, 300 to 400 mg of magnesium glycinate, 30-50mg of zinc picolinate and the proper amount of copper to go with it which would be 3-5 mg (10-1 ratio) and you need 4700 mg of potassium a day. You can deduct from these amounts if you can reasonably estimate how much your getting from your diet. The D3 doesn't work/without the K2 or Magnesium or Zinc and they don't work without the D3. D3 is fat soluble so needs to be taken with food. You can take zinc or Magnesium with it but not both. Take the other at a seperate time. I would also begin intermittent fasting asap for a 16 to 18 hour fast each day building up to be able to do a 3/5/7 day fast eventually. Building up your immune system by replenishing your nutrients and avoiding the root cause being toxic food. On Facebook look up Dr Berg for info/videos on vitamins/ minerals and what the do for the body and what symptoms you have if deficient. On YouTube type in amazing benefits of fasting and it should be a Indian doctor wearing a head cap/bandana with glasses. Great info on fasting.

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@trfire I do agree with addressing vitamin and mineral deficiencies. But before
supplementing - best to have tests to see what is actually deficient otherwise at best you’re peeing expensive pee (quote unquote by my oncologist).

I went through extensive stage 4 appendix cancer treatments without supplements by eating healthily at least 80% of the time. I couldn’t face any red meat so ate chicken, fish and seafood.

When I asked my oncologist what I could/should take to help my body he said nothing my bloods are excellent.

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@isadora2021

@trfire I do agree with addressing vitamin and mineral deficiencies. But before
supplementing - best to have tests to see what is actually deficient otherwise at best you’re peeing expensive pee (quote unquote by my oncologist).

I went through extensive stage 4 appendix cancer treatments without supplements by eating healthily at least 80% of the time. I couldn’t face any red meat so ate chicken, fish and seafood.

When I asked my oncologist what I could/should take to help my body he said nothing my bloods are excellent.

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The problem with testing is they are not a accurate barometer for all vitamins and minerals. Some of these should be more concentrated within the cells, bones or other tissues so a simple blood test doesn't give you those values. Microbiologist and Endocrinologist have a better understanding of the chemical processes that take place when consuming food and the breakdown of the nutrients by the body for nutrition. So many times the body will rob p eter to pay paul when we are deficient and our absortion into bones, muscle and skin from the blood is compromised.

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@trfire

The problem with testing is they are not a accurate barometer for all vitamins and minerals. Some of these should be more concentrated within the cells, bones or other tissues so a simple blood test doesn't give you those values. Microbiologist and Endocrinologist have a better understanding of the chemical processes that take place when consuming food and the breakdown of the nutrients by the body for nutrition. So many times the body will rob p eter to pay paul when we are deficient and our absortion into bones, muscle and skin from the blood is compromised.

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@trfire I remain sceptical about taking supplements without first consulting a reputable registered professional. Some may be harmless so overdoing it on what’s not needed isn’t risky just expensive. Others can actually be harmful including in combination or in combination with medications we’re on.

So important if we’re on medications to let our doctors know what we’re self administering.
https://www.health.harvard.edu/staying-healthy/dont-waste-time-or-money-on-dietary-supplements

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