smodesitt,
Forteo works well for me. -3.1 to -2.6 in the lumbar spine. I didn't have side effects.
It doesn't skew the blood work numbers.
It can reflect higher blood calcium. There is an actual rise for the first hours after the injection. So time any calcium testing by delaying the injection until later in the morning.
If calcium levels are high during use it might indicate a preexisting problem with the kidneys or parathyroid glands, which you'd want to resolve before continuing with the drug.
That is a lot of fractures; I hope you don't ache. And I'm glad you didn't suffer vertebral fractures above the tailbone.
You're going to be on the very best medication. Cheers to your endocrinologist and good cheer to your bones.
I can go on about Forteo extensively. I'd better wait for any questions you might have.
Thank you so much for your reply! This site has been very informative and helpful. Do you take calcium supplements while taking the Forteo? My sister has the same problem as me; however, her numbers are better and is doing the supplement route. I've tried that with exercise, diet and it didn't work for me.
Thanks again for your encouragement!
Alvin, you may have fractured further because Evenity didn't have enough time to work. I keep hearing about people fracturing while on Evenity. Because of this were I in your situation I would forfeit further injections of Evenity I ask the doctor (endocrinologist?) to prescribe either Forteo or Tymlos. If I hadn't already I would check testosterone levels. I would also want the bone marker P1NP and in one month.
I'm not happy with the way Prolia or Evenity works. But I would take either, if there weren't better medications available.
Thank you for that valuable information.
I was not aware of P1NP testing.
I will request either Forteo or Tymlos as they seem to have the most positive results.
I have requested for the Dr to refer me to a Gastroentologist and Endrocrinologist as well.
Further more , I am going for a DEXA scan and to have my hormone levels tested as well before moving onto the next faze of medications.
Have you or anyone here heard of a REMS test? ( Risk Evaluation And Mitigation Strategy )
All the best to you
Alvin
Thank you so much for your reply! This site has been very informative and helpful. Do you take calcium supplements while taking the Forteo? My sister has the same problem as me; however, her numbers are better and is doing the supplement route. I've tried that with exercise, diet and it didn't work for me.
Thanks again for your encouragement!
I take Citrical at a low dose 200mg to 500mgs a day. While my calcium intake from food is good. We don't absorb the available amount. I drink fairlife milk which has 13 mgs a cup, but we can only absorb about 1/3 of that. https://courses.lumenlearning.com/suny-nutrition/chapter/12-22-calcium-bioavailability/ It is almost impossible to judge how much calcium you actually get from your diet. The advice for us is 1,200mg in a day.
The trouble for most of us is the loss of estrogen. My opinion is that the perfect diet and the perfect amount of exercise can't protect us sufficiently. I expect your sister will be joining you later on. Vitamin D is an important supplement with Forteo because the medication uses D to great effect and your levels will probably drop. Mine did. I like to keep the lab number at 70ng/mL, though most will say 40ng/mL is the best number on the labs.
I so hope you have a good experience with this amazing drug.
I just found this out hadn’t dit the scan DEXA have no pain didn’t know I had it had an x-ray and an MRI and have not heard anything from the doctor so I’m checking with all of you on Mayo Clinic site to see different recommendations before I move forward, they recommended Prolia but horrible side effects so refused it.What is anabolic?
@rickylucy63,
Tymlos or Forteo, they build bone. You are usually on them about 2 years. I have been on Tymlos for 5 weeks now. So far side effects are manageable.
I have 2 doses of Evenity left and in the case of my original fracture , it remained unchanged but a recent scan has detected more fracture in my T8 while T7 and T11 remain unchanged.
My Dr wants me to go on Prolia but I am have having second thoughts about going this route.
I am a 57 year old male and I have found this forum very helpful.
Thank you for your time.
Alvin
I had Xgeva first, then Prolia and now am about 6 months into my Evenity. I have 12 fractured vertebrae in my spine, broken ribs, broken toe/ foot section. I would caution one thing for sure with any of these drug choices. If you have any dental work done, you need to time it so it isn't done 3 months before or 3 months after getting your shot. You will be at risk of having necrotic jaw disease. If you end up with that, you could easily die or at the very least end up having your entire jaw removed.
I take Citrical at a low dose 200mg to 500mgs a day. While my calcium intake from food is good. We don't absorb the available amount. I drink fairlife milk which has 13 mgs a cup, but we can only absorb about 1/3 of that. https://courses.lumenlearning.com/suny-nutrition/chapter/12-22-calcium-bioavailability/ It is almost impossible to judge how much calcium you actually get from your diet. The advice for us is 1,200mg in a day.
The trouble for most of us is the loss of estrogen. My opinion is that the perfect diet and the perfect amount of exercise can't protect us sufficiently. I expect your sister will be joining you later on. Vitamin D is an important supplement with Forteo because the medication uses D to great effect and your levels will probably drop. Mine did. I like to keep the lab number at 70ng/mL, though most will say 40ng/mL is the best number on the labs.
I so hope you have a good experience with this amazing drug.
This is the best information. I've just started reading more and now realize this is the best option for me. You have done your homework! This support group is great.
I had Xgeva first, then Prolia and now am about 6 months into my Evenity. I have 12 fractured vertebrae in my spine, broken ribs, broken toe/ foot section. I would caution one thing for sure with any of these drug choices. If you have any dental work done, you need to time it so it isn't done 3 months before or 3 months after getting your shot. You will be at risk of having necrotic jaw disease. If you end up with that, you could easily die or at the very least end up having your entire jaw removed.
Thank you for that. I was aware of the dental work being an issue while on Evenity.
I will be getting a several tests done before moving onto any other drugs.
I am not opposed to trying something new like Forteo or Tymlos.
I do need to find a new Endocrinologist as the one I'm seeing currently dismisses all my questions in regards to the tests and only wants to get me straight onto more medication instead of possibly finding out what is causing the breaks.
I have another option that I will consider in the very near future , my wife's sister is a Dr in Central America and I can have all my testing done in matter of days if I don't get results here from my upcoming appointments this next week.
Thank you for your time and I wish you all the best.
I just found this out hadn’t dit the scan DEXA have no pain didn’t know I had it had an x-ray and an MRI and have not heard anything from the doctor so I’m checking with all of you on Mayo Clinic site to see different recommendations before I move forward, they recommended Prolia but horrible side effects so refused it.What is anabolic?
The same thing happened to me. I was on Forteo for 2 years. After that my docs wanted me to go on Prolia but like you I refused. They started me on Actonel instead.
Thank you for that. I was aware of the dental work being an issue while on Evenity.
I will be getting a several tests done before moving onto any other drugs.
I am not opposed to trying something new like Forteo or Tymlos.
I do need to find a new Endocrinologist as the one I'm seeing currently dismisses all my questions in regards to the tests and only wants to get me straight onto more medication instead of possibly finding out what is causing the breaks.
I have another option that I will consider in the very near future , my wife's sister is a Dr in Central America and I can have all my testing done in matter of days if I don't get results here from my upcoming appointments this next week.
Thank you for your time and I wish you all the best.
bonebuddiesforlife,
If you go to Central America, you might get your Forteo pens there. I know further south in Ecuador the pens are $100 a pen. Post back. I hope you go and have a wonderful vacation.
bonebuddiesforlife,
If you go to Central America, you might get your Forteo pens there. I know further south in Ecuador the pens are $100 a pen. Post back. I hope you go and have a wonderful vacation.
I will keep you posted .
I’m going to see my Dr this coming week and if no results or referrals then I’m off to Honduras.
I also need to change my endocrinologist, not willing to do any testing to see what the cause is , just more medication.
Not opposed to it , would just like more clarity and testing first.
Connect
Connect
Like
Helpful
Hug
Thank you so much for your reply! This site has been very informative and helpful. Do you take calcium supplements while taking the Forteo? My sister has the same problem as me; however, her numbers are better and is doing the supplement route. I've tried that with exercise, diet and it didn't work for me.
Thanks again for your encouragement!
-
Like -
Helpful -
Hug
2 ReactionsThank you for that valuable information.
I was not aware of P1NP testing.
I will request either Forteo or Tymlos as they seem to have the most positive results.
I have requested for the Dr to refer me to a Gastroentologist and Endrocrinologist as well.
Further more , I am going for a DEXA scan and to have my hormone levels tested as well before moving onto the next faze of medications.
Have you or anyone here heard of a REMS test? ( Risk Evaluation And Mitigation Strategy )
All the best to you
Alvin
-
Like -
Helpful -
Hug
1 ReactionI take Citrical at a low dose 200mg to 500mgs a day. While my calcium intake from food is good. We don't absorb the available amount. I drink fairlife milk which has 13 mgs a cup, but we can only absorb about 1/3 of that. https://courses.lumenlearning.com/suny-nutrition/chapter/12-22-calcium-bioavailability/ It is almost impossible to judge how much calcium you actually get from your diet. The advice for us is 1,200mg in a day.
The trouble for most of us is the loss of estrogen. My opinion is that the perfect diet and the perfect amount of exercise can't protect us sufficiently. I expect your sister will be joining you later on. Vitamin D is an important supplement with Forteo because the medication uses D to great effect and your levels will probably drop. Mine did. I like to keep the lab number at 70ng/mL, though most will say 40ng/mL is the best number on the labs.
I so hope you have a good experience with this amazing drug.
@rickylucy63,
Tymlos or Forteo, they build bone. You are usually on them about 2 years. I have been on Tymlos for 5 weeks now. So far side effects are manageable.
I had Xgeva first, then Prolia and now am about 6 months into my Evenity. I have 12 fractured vertebrae in my spine, broken ribs, broken toe/ foot section. I would caution one thing for sure with any of these drug choices. If you have any dental work done, you need to time it so it isn't done 3 months before or 3 months after getting your shot. You will be at risk of having necrotic jaw disease. If you end up with that, you could easily die or at the very least end up having your entire jaw removed.
This is the best information. I've just started reading more and now realize this is the best option for me. You have done your homework! This support group is great.
Thank you for that. I was aware of the dental work being an issue while on Evenity.
I will be getting a several tests done before moving onto any other drugs.
I am not opposed to trying something new like Forteo or Tymlos.
I do need to find a new Endocrinologist as the one I'm seeing currently dismisses all my questions in regards to the tests and only wants to get me straight onto more medication instead of possibly finding out what is causing the breaks.
I have another option that I will consider in the very near future , my wife's sister is a Dr in Central America and I can have all my testing done in matter of days if I don't get results here from my upcoming appointments this next week.
Thank you for your time and I wish you all the best.
The same thing happened to me. I was on Forteo for 2 years. After that my docs wanted me to go on Prolia but like you I refused. They started me on Actonel instead.
bonebuddiesforlife,
If you go to Central America, you might get your Forteo pens there. I know further south in Ecuador the pens are $100 a pen. Post back. I hope you go and have a wonderful vacation.
I will keep you posted .
I’m going to see my Dr this coming week and if no results or referrals then I’m off to Honduras.
I also need to change my endocrinologist, not willing to do any testing to see what the cause is , just more medication.
Not opposed to it , would just like more clarity and testing first.
-
Like -
Helpful -
Hug
1 Reaction