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Pulmonologist says I should be dead by now

Autoimmune Diseases | Last Active: 1 day ago | Replies (16)

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@cheyne

Hi,
Interesting that you are finding veggies a problem, I thought I was the only one with that problem. I have been having problems with reactions to some veggies while others I have to restrict the amount I consume and it is getting worse. My list of consumables is getting shorter by the month leaving me eating what is not supposed to be good for me, but keeps me alive!
I'm three years into being dead and have to say I haven't noticed the difference! The important fact to remember is that medicine is not an exact science, there are a lot of assumptions and quess work involved.
I endured the roller coaster ride for 13 years and can now sit back and get on with what is left of life for me, now we know what diseases I actually have. It can be pretty rough constantly being told it is this disease or that disease and ultimately it's in your head, we can't find anything wrong. Life turned around when one bright spark in ED recognised the symptoms and made the diagnosis. Hasn't changed the symptoms and it is incurable but at least I'm not fussing over what it might or might not be. It bought a certain amount of calmness to my life, I know my fate, death, no different to anyone else alive, we all do it, just some sooner than others. Besides I'm theoretically dead anyway!
We each have to fight for an answer as in general with the health sector it is sadly a case of out of sight out of mind. I was never one to push so hard instead committing to what the H--- and getting on with my life. Looking back on my medical records this all started 27 years ago and went unnoticed despite it being recorded. I'm more vocal about my health now and find making myself aware of my conditions helps me extract the medical help I believe I should get. I get to discuss my health on my specialists terms which they seem to respond better to, as I understand the mumbo jumbo they are talking.
Keep pushing for answers, you are your best advocate.
Cheers

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Replies to "Hi, Interesting that you are finding veggies a problem, I thought I was the only one..."

Hi Cheyne! I love that you are three years in to "being dead" and "haven't noticed the difference!) You cracked me up with that and I'm really thankful to you for sharing your great sense of humor.
What an incredible trip you have been on. All these years that you've been among the "walking dead" and yet you have more spunk than many who are "living" in spite of all you've been through.
Thank-you for taking the time to reply, Cheyne. You made my day.