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Anyone tried Kevzara for PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 13 7:01pm | Replies (68)

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@linda7

Unfortunately the $2000 cap is meaningless if no Medicare Part D plan in your area will cover Kevzara, which is what I faced for 2025. I was on patient assistance in 2024 but was cut off at the end of the year. It seems illegal to me to have a drug Medicare-approved for a disease and then to allow drug plans not to cover it. My drug plan did offer me a "deal": $16,000 a year as opposed to the original estimate of $33,000. I went off Kevzara and had a flare-up of PMR with some possible GCA symptoms. My rheumatologist has put in a prescription for an Actemra biosimilar infusion. We'll see what happens. In the meantime he raised my prednisone dose.

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Replies to "Unfortunately the $2000 cap is meaningless if no Medicare Part D plan in your area will..."

Thank you for educating me on this caveat. I’m sorry to learn about your negative experience. I hope you find the relief you deserve very soon.

My rheumatologist had suggested Kevzara for my PMR late last year. I was in the same situation as you with Medicare Part D, not covering it. When I began to have a recurrance of my GCA symptoms, she prescribed Actemra infusions. I get them every 4 weeks. I'll get my third, this coming Wednesday. So far, they've been a game changer for me. I'm down to 9 mg. of prednisone. I don't know how long I'll be getting infusions, but as long as I can reduce/eliminate prednisone, I don't care. Good luck.

Yikes!!!