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PKD and Severe Right side Abdominal Pain

Kidney & Bladder | Last Active: Mar 17 11:00am | Replies (8)

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@gingerw

@kzeiss I'm so sorry to hear about your son's pain as it is presenting. Just my humble opinion here, but it sounds like they didn't do all they can for him, at the ER. Has he been in contact with his dialysis clinic, and doctor? This can be an emergency, with long reaching effects. What did the sample of his PD fluid show? Does he have any issues with bowel movements, or the color of his stool? Is there a possibility the PD catheter is causing an issue?
Ginger

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Replies to "@kzeiss I'm so sorry to hear about your son's pain as it is presenting. Just my..."

Great questions: That is our problem and challenge ...PD fluid is negative, no problems with bowels. Went to dialysis center meeting for review last Monday and they said they did not think was his tubing. Additionally, severe headache on right side.

Still searching for pain doctor in Denver area who understands PKD.

Thank you for your response. Seems we need a magic wand!