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How long have people waited for surgery?

Brain Tumor | Last Active: Mar 15 12:44pm | Replies (5)

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@dbcondrey

i AM a former renal sw who dealt alot with medicare insurances because dialysis is paid at 80%y and the are responsible for the remaining 20% for a months of treatments this could be well into the $600. range. When we turned medicare elgilble, i told my husband who is now diagnosed with Glioblastoma , that we were going to get medicare and aarp supplement, yes its costly but the monthly premium is still less than the copays that accumulate with any serious illness as well you are their mercy re; doctors and hospital choice. I urge anyone to heed what the person above says, We have not had a bill, he is now at 13 months, unfortunately the spot was not operable, not could it be biopsied , the latter precluded us from seeking any other options, we are happy with our team, he had radiation/chemo, incenter chemo and oral. Unfortunately he looks better on paper than he feels in person, and now it is the ? of toxicity with txs so with nothing to loose he has stopped treatment. for the past 6 weeks, his appetite has just returned but his mental functioning and mobility are declined but stable at present but the fatigue remains overwhelming and disabling. we take one day at time, we know that it was slow growing, when first started, as i noticed symptoms as early as 2 years before dx, but he minimized them until i put my foot down. Also tried the other tx , with putting electrodes on for 18 hours a day, that was chaos between the lack of good support and it having several interruptions with alarms, he stopped that As it was we were getting it reimbursed by medicare, and they went up to several appeals with the final decision this past dec, 4 months after he stopped it, Medicare was clear we are not on the hook for it, some people swear by it, others not so much, but nevertheless a personal decision.

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Replies to "i AM a former renal sw who dealt alot with medicare insurances because dialysis is paid..."

sorry, typo, we were NOT getting the 2nd tx reimbursed by medicare, they denied claims for several months .

dbcondrey: I am very sorry to hear of your husband's diagnosis. It is such a challenging situation for him and also you, his primary caretaker. Hang in there. You're his go-to support person and he appreciates it. (I know just a little about about the caretaker part as I had my dad come live with me the last year of his life after he was diagnosed with inoperable lung cancer.)