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Fatigue post treatment and fibromyalgia
Breast Cancer | Last Active: Mar 16 5:27pm | Replies (7)Comment receiving replies
Hi Sue,
Yesss I had 6 of 8 rounds of chemo, partial mastectomy and 12 of 20 rounds of radiation. I have connective tissue disease and fibromyalgia. After round 12 of radiation, I became very sick (my husband said I looked grey) and extremely fatigued. I was in bed for 2 weeks after going to the ER on advice from radiation oncology PA. I had horrible burning under my arm and behind my lung, but no pulmonary embolism thankfully. It has been 1 months since I stopped radiation and every day is a struggle. The burning comes and goes. I wish I never would have agreed to do it, but I'm grateful I stopped when I did. I use no sugar added electrolyte powders, multivitamins and micro green plant powders along with A LOT of rest every day, sometimes all day. I pray you find peace and complete healing.
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Hi @ygregg
I thank you and wish you the same.
I wish there was a regimen to follow that i could tell you that will work. It's just time and rest and patience. My biggest issue was accepting that I just was not going to have the energy I had prior to radiation. That led me down the rabbit hole of depression and the anxiety I believe is from my hormone issues. I have tried many supplements but finally after hits and miss.I think my Doctor and I have found the medication that is working for me.It is called trazadone it's an SARi antidepressant. It's for sleep, anxiety and depression. I wish I would have had this 6 mths ago. I am finally starting to feel more level and getting better sleep is helping my energy. It's still early days and I am on the starting dose 25mg. It gets increased after the 2nd week. I am feeling hopeful. One thing that everyone told me was just walk 10 or 15 min a day outside if you can. I had to walk in my apartment building but it was walking. Now our weather is nicer.I have been walking outside and did my first thirty minute walk yesterday. Once you are able to do a few errands really pace your day.
I am going to share this breast cancer support website. They do zoom meetings twice a week. It's great support. Breastcancer.org
When you create your log in. Go to support then go to virtual support groups. You will join the one that pertains to you. Where your at with treatment in or finished. They email you zoom links. 💗 take care