← Return to Dysautonomia is ruining my life, no help from doctors

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@artemis1886

That’s all you can do. It’s frustrating when your hands shake so bad you can’t cut up your food and feed yourself. I have to carry a cup with a lid otherwise I spill it or I grip the cup so hard I break it and the drink goes everywhere. Bottled water has to have a lid that you squeeze no lid uhh. I sat down and listed everything each one causes motor neuropathy, sensory neuropathy, SFN, and dysautonomia and cardiac autonomic neuropathy. The kicker for me is the severe seizures that I hav in my sleep waking up with blood all over me and the &act it causes paralysis. No neurologist told me about paralysis.
My seizures are tonicclonic seizures.

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Your posts and others have helped me deal with dysautonomia (without POTS) but with OH…. with syncope once but somethings it sets off severe fluctuations in BP. Eating any kind of food can knock me for a loop as small meals make me feel super bloated and full. It’s debilitating but I’m at a bad time for severe pain in my pelvic area and colon, hence searching Mayo Clinic and now I know I’m not alone. The chronic constipation seems to have upset the whole tract. Everyone has their story and it must be so baffling for doctors. I was diagnosed at the Kaye Edmonton Clinic in Alberta, Canada. Thanks again for all your posts.