1. < Neuroendocrine Tumors (NETs)

My carcinoid tumor is inoperable: What are the best ways to control?

Posted by panorman3 @panorman3, Feb 27 5:30pm

I have a carsonid , inoperable i have had it for sometime, just now noticed. what is the best way to control. I am waiting six months to check to see how fast it is growing.

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panorman3 | @panorman3 | Mar 4 3:18pm
In reply to @hopeful33250 "Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your..." + (show)
@hopeful33250

Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your post that your carcinoid tumor is inoperable.

Please explain a little bit more about where the carcinoid is located. For example, is it in the digestive tract or lungs? How are you feeling?

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it is located in the centrest hvering above and in between the intestines. Does the shot in the butt keep the tumor from growing.

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2 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 5 2:50pm
In reply to @panorman3 "it is located in the centrest hvering above and in between the intestines. Does the shot..." + (show)
@panorman3

it is located in the centrest hvering above and in between the intestines. Does the shot in the butt keep the tumor from growing.

Jump to this post

Hello @panorman3,

You are asking good questions. Some members of this group have had a reduction in the sizes of tumors and some have not. If you would like more information, please read the posts in the following discussion group,
--First Lanreotide Injection
https://connect.mayoclinic.org/discussion/first-lanreotide-injection/?commentsorder=newest&pg=4
What does your doctor say about this type of treatment?

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panorman3 | @panorman3 | Mar 14 5:31am
In reply to @hopeful33250 "Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your..." + (show)
@hopeful33250

Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your post that your carcinoid tumor is inoperable.

Please explain a little bit more about where the carcinoid is located. For example, is it in the digestive tract or lungs? How are you feeling?

Jump to this post

Centriest

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 14 1:12pm
In reply to @panorman3 "Centriest" + (show)
@panorman3

Centriest

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I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is in the location you described earlier. If so, here is a discussion about NETs in the mesentery.
https://connect.mayoclinic.org/discussion/nets-mesentery-small-bowel-resection-lanreotide-octreotide-story/
I hope you will find some helpful information in the discussion.

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1 reply
jlsgt | @jlsgt | Mar 14 4:37pm
In reply to @panorman3 "it is located in the centrest hvering above and in between the intestines. Does the shot..." + (show)
@panorman3

it is located in the centrest hvering above and in between the intestines. Does the shot in the butt keep the tumor from growing.

Jump to this post

I does sound like you have NETs of the mesentery which is the tissue around your intestines. I've got the same condition. Lanreotide is injected in the bottom and it is said to control Nets growth for many people. I've been getting those shots for about 2 years myself.

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panorman3 | @panorman3 | Mar 14 5:33pm

Thanks and GOD bless your condition
REV Paul Norman

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panorman3 | @panorman3 | Mar 14 5:36pm
In reply to @hopeful33250 "I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is..." + (show)
@hopeful33250

I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is in the location you described earlier. If so, here is a discussion about NETs in the mesentery.
https://connect.mayoclinic.org/discussion/nets-mesentery-small-bowel-resection-lanreotide-octreotide-story/
I hope you will find some helpful information in the discussion.

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Yes thanks mesentery

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