Connect
← Return to What on earth could be causing my nerve pain in my legs?
Discussion
What on earth could be causing my nerve pain in my legs?
Spine Health | Last Active: Aug 28 4:24pm | Replies (25)Comment receiving replies
@angrynerves
I fired doctors for saying I was a hypochondriac when I actually had an undiagnosed spinal cord compression injury (degenerative cervical myelopathy) causing many symptoms below my neck (including legs/bladder). They always tell women that their symptoms are “in their head” and never say that to men. Don’t tolerate being dismissed. Definitely take care of your mental health because chronic pain can cause anxiety/depression.
Your scoliosis plus disc bulges/protrusions in your lower thoracic and lumbar spine may be the source of your spinal cord/nerve root compression/injury that is causing nerve pain.
Have you and your mom read through all of your medical records in detail (including MRI report details)? If you had a positive hla b27 in your bloodwork, you may have AS due to your symptoms.
1. https://rheumdoctor.com/i-have-a-positive-hla-b27-what-does-it-mean/
2. https://www.mountsinai.org/health-library/tests/hla-b27-antigen
3. https://www.urmc.rochester.edu/encyclopedia/content?ContentTypeID=167&ContentID=hla_b27_antigen
Replies to "@angrynerves I fired doctors for saying I was a hypochondriac when I actually had an undiagnosed..."
Connect
I absolutely agree with this - do NOT let anyone tell you no, we’ll wait and see, etc.
I agree - bring your mom to future doc visits; after you both have read every word of all imaging, as well as doc notes. Almost all docs have ‘MyChart’ or similar, where everything they put in your note is available for you to read.
Unfortunately, you will have to do a lot of reading/investigating causes for symptoms - start w/Youtube. Now apply this sleuthing to understanding your imaging reports as well as any notes you can get.
When you have a good handle on causes, go to a doc - I don’t know if you want to start with a new one. It seems like the current ones have washed their hands of you, so it may be a good idea. Try to go to a University based physician - not a small town Ortho/GP/GYN!!!
I would definitely ask what their feeling is with your +AS antibody test, how they want to treat you. Of course, you will have all of this info written down, and you will be super smart and NOT let them say any BS that doesn’t give you a treatment plan.
Did they do a full RA work-up? Has your SA been repeated?
Good luck,
Karen