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New member with PMR

Polymyalgia Rheumatica (PMR) | Last Active: 10 hours ago | Replies (21)

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@joan7

What city are you located in Oregon? I will try to help you find someone the best I can. Also, Mayo Clinic has support groups online for PMR. Maybe you can ask about a Rheumatologist in the area where you live. I'm on the east coast, but you need to have a Rheumatologist not a Primary Care Doctor. I would definitely go for a second opinion on a new Rheumatologist. Ok, this is how it goes. To get better, this is not a race, it's a journey. You may find that once you start come down off the Prednisone, you will start experiencing bouts of pain. Do not get discouraged. Although they do not recommend to take Advil (my doctor said it was okay as long as I didn't overdue it), so I took 1 Advil Gel for 1 or 2 days and I felt a hundred percent better in an hour. Then I was able to taper down without too much pain. To be blunt the PCP was incorrect in telling you to come off the Prednisone fast. When you get down between 15 to 10 mg you may start to feeling your PMR symptoms coming back. When that happens, I would start going down only by 1 or 2 mg with each taper. This was my taper: 20 mg to 17.5 to 15 to 12.5 to 10 (at this point you may start experiencing pain; ask you doctor about taking 1 Advil Gel) to 7.5 to 5 to 4 to 3 to 2 to 1 mg. You can also come down by taking the old dose and the new dose every other day, for example: Your taking 5 mg and going down to 4 mg. You can take 5 mg one day and the next take 4 mg, and the next day take 5 mg and the next day take 4 mg, etc. etc. Then do this with each lower dose. This will help you come down off it slowly, and hopefully you will be Prednisone free. I hope this helps!

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Replies to "What city are you located in Oregon? I will try to help you find someone the..."

I’m in Redmond Oregon. I’ve exhausted all the Rheum searches in this area. There are only two primary medical here and one hospital group. It’s small! I’m now looking into Salem or Portland, but again, very, very long new patient waits.