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Polymyalgia Rheumatica (PMR) | Last Active: 4 hours ago | Replies (19)
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Hi Terri, I have been off prednisone for about 6 months but it took over two years to get there. I starts at 20mg for two weeks, then 15 for two weeks, then 10mg. Then I did the 1mg reduction every 4 weeks until I got stuck around 4-5 mg (which seems to be a common spot to get stuck). I would usually have a little discomfort for a few days when I did my reductions but if it lasted two weeks, I increased and stayed at that level until I was pain free +2-4 weeks before trying again. Eventually I got there! At the very end I was on 1 mg for months and then forgot to take my pill one day and it was ok!
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I went from 20 for 4 weeks, 17.5 for 4 weeks, 15 for 2 days and the pain came back. I’ve been back on 17.5 for 2 weeks, and tomorrow I am quartering my 5mg and taper to 16.25 mg. Sure would be easier if my doc would give me different milligrams of prednisone so I could taper on .5 mg. +|- as my needs adjust. She has me on a strict regime, assuming I will be able to just go down by 2.5 every 2 weeks. She doesn’t like that I am following a pain designated dosing. She doesn’t NOT understand the degree of pain! I believe doctors ignore pain patients because there is nothing they can do to help without rushing their license.