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When I was first diagnosed with PMR I had symptoms of headaches and blurred double vision. My Rheumatologist immediately put me on 60 mg of Prednisone suspecting that I had GCA. After that, I did have the temporal biopsy which I feel is an invasive procedure, but I felt it was necessary as well since my PMR pain was off the charts. Personally, the consequences of blindness was a risk I was not willing to take, and that is why I had the biopsy done. Reading your concerns the only thing that I was thinking about was why your doctor put you on such a low dose of Prednisone? Even when I researched the dosage for Prednisone for GCA it states mostly the 60 mg dose. Some info does say 40 - 60 mgs, but I was glad that my doctor was proactive in treating me aggressively at the time. The second question that I have would be how long have you been experiencing temporal headaches? My Rheumatologist told me that GCA needs to be treated within 10 days of onset of symptoms, otherwise, it could lead to blindness. What are your thoughts on this?

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Replies to "When I was first diagnosed with PMR I had symptoms of headaches and blurred double vision...."

I was originally diagnosed with PMR on Feb, 17th , 2025 after my complaints of stiffness and headaches and muscle pain which my PCP thought was related to my starting a statin. Finally, I got in to see him and told him I would not take statin any longer because I hurt everywhere and that's when he did blood tests for PMR and RA, etc. He decided I had PMR and set the dose of Prednisone at 20 MG,,,,I made appointment to see Rheumatologist but never got in until 7 weeks later. I agreed to ultrasound which I just had this past Friday and was NEGATIVE. Rheumatologist just lowered me to 15MG prednisone....Headaches have been better these last 3 days, but I carry 40 MG with me just in case.