Does anyone have erythromalalgia?

Posted by piemonte @piemonte, Mar 10 8:56am

Erythromalalgia is a condition that causes burning and redness in the hands and feet. I become symptomatic when I exercise and when I sleep. Nighttime is the worst. I go to bed with cold feet and wake up a few hours later with burning red feet.

Has anyone else struggled with this condition?
Thank you.

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gregd1956 | @gregd1956 | Mar 11 5:45pm

Dear @piemonte
I need & use from my feet up thru the rest of my legs. If I use the wrong thing, my right foot is pupped up and is cold and a lost balance or less feeling on my right foot.

That’s a disease and keep my legs during the day like foot-leg closes. According to my wife gets worse, if I don’t keep these from my top legs to the bottom of my feet.

As I get older I need to help my legs/feet - daily. Physical exericinrg has been decades way before my brain-injury bicycle accident from 2012. I got a 3-bicycle thing and helps the strength of my inside muscle. But, I still need holding my legs-feet.

Thx,
Greg D @greg1956

itchyd | @itchyd | Mar 14 12:40am

Sorry to hear of your suffering. I haven't had erythromelalgia. But, I did have a brief bout of idiopathic peripheral neuropathy a few years ago that was quite distressing.
You don't mention any treatment(s) you may be trying. Are you getting professional care?
Again, sorry for your pain.