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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1945)Comment receiving replies
@mcoplien, it's always frightening when CA19-9 shows higher levels. Have you had further testing? Any news?
Replies to "@mcoplien, it's always frightening when CA19-9 shows higher levels. Have you had further testing? Any news?"
@colleenyoung
This is our update - My husband's CA 19-9 has continued to rise every 3 months, 186, 380, 886 and now in October it was 4200. His scans had been negative for metastatic disease until October, his stomach lit up on a PET scan. He had an endoscope yesterday, he has a tumor embedded in his stomach. This has been missed on CT scans. We see oncology tomorrow. They will probably start Chemo Gemcitabine and abraxane.
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Hi, this is Kim's Mike's wife, no more testing yet. Mike's Pan cancer was found incidentally on a PET scan for retroperitoneal fibrosis. He is already scheduled for another PET for following his aortitis and RPF on 3/27/25. They will also do another CA 19-9 on that day. So no more testing yet. the Oncologist said that is what he would be doing anyway. We are also scheduled for a second opinion at Mayo on 4/9.
In the meantime Mike was diagnosed with type II Diabetes last week, I assume it is related to having half his pancreas removed... but endocrine says to treat him like type II, he just started Metformin.