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@stevestenberg31

I had the dotonate PET Scan after CAT, MRI, liver biopsy. I also had primary partial blockage in SI for months before having emergency surgery. Removed 10in SI, 8 lymph nodes, GB, 2.5cm NET. You need to get an NET specialist oncologist ASAP. About 60% of patients it has matasisized before they find it. A good specialist will suggest the right treatment course and insurance solutions. You insurance may dictate your treatment so you need someone that can navigate this for you. I was diagnosed Jan 2023 after months of all of the above symptoms. I'm now 57 feeling good and living a normal life on once a month Lanreotide injections. 🙏💚

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Replies to "I had the dotonate PET Scan after CAT, MRI, liver biopsy. I also had primary partial..."

Thanks! A normal life! That's great! Your CT was negative with tumors in SI causing a partial blockage? Did you have a 24-hour 5-HIAA urine test? Or maybe that's just useful for liver metastasis.