Hello @chaplaindan and welcome to the NETs support group on Mayo Connect. It looks like you have received a lot of helpful posts already. This is a great forum to get support, encouragement, and information.

I appreciate your seeking to learn as much as you can about this rare cancer. It is difficult to face the unknown, however, gathering as much information and education is important.

My first comment would be to seek at least one consultation with a NETs specialist. After an initial consultation, a NET specialist, will often work with your local oncologist to direct the best care possible for your wife. Mayo Clinic has NET specialists in all of the three Mayo locations. If you would like to consult at Mayo, here is a link with appointment information, http://mayocl.in/1mtmR63

If, for any reason, you cannot get a Mayo appointment, the Carcinoid Cancer Foundation has a listing of NET specialists throughout the U.S. and perhaps you can obtain a virtual appointment if there is no one nearby, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

I would also invite @kim1965 and @tomewilson to this discussion as their wives also have NETs and are active in their care.

What symptoms led to your wife's diagnosis?