← Return to Gleason 8 diagnosis at 51: Likely opting for surgery

Discussion
Comment receiving replies
@surftohealth88

You pointed to many important facts that I myself discovered in past week of frantic research and self-education about PC. Yes - more and more younger people are diagnosed with PC and unfortunately in later stages because nobody is testing them for PC. That means that it is not the result of more testing but of NO testing at earlier age. If the number of cases rose and was discovered at the same stage of cancer and in the same age cohort comparing to 20 years ago than it could be attributed to more awareness and more testing. But it is not the case. It seams that man get this cancer now at earlier age and by the time they are diagnosed it is higher grade.
I also found out reading research articles and case descriptions that only after prostate is removed and examined in detail outside of the body one can know what exactly is level of pathological changes in the tissue and that it very, very often shows more advanced disease than what biopsy shows. My husband and I agreed when he was 3+3 that if it ever goes even just to 3+4 that the damn thing would be removed. He might not be young man in numerical age but he looks and behaves like much younger person and his parents lived to 90 so I do not even understand why is treatment adjusted by "age" group ? I of course understand that some older man might have other limitations and /or different preferences or are with other conditions that can make surgery too aggressive as approach but the more I read the more I can see how surgery gives a lot of advantage if done early since than radiation is still an option if needed later on, where it is not possible other way around. Yes , there are side effects, but hey, for us personally there is no worse "side effect" than risking not knowing what is brewing in that gland or around it. Unfortunately because of laxed surveillance in our case we might not have other option than radiation. We shall see. Choice of treatment plan is of course very individual and very personal decision that involves a lot of thought and consideration and it is important to have all of the facts and than do what feels the best. Good news is that it seems both approaches give very, very good results.
PS: as far as I found so far PC advocacy groups now suggest starting testing at 40 to get "baseline " result of PSA , to see what is normal level for each individual. As a side-note, my husband lost 50 year old friend to PC 4 years ago. He was never tested because he "was not 50" and at 50 his PC was so advanced that he died in span of a 4 weeks . He had NO symptoms of any illness till tumors reached his lungs.

I do not understand doctors - I really don't. PSA test is like 60 bucks ???? Even if not covered by insurance they should suggest it to their patients so patients have an option to do it themselves. How is it possible that we here as lay persons know about benefits of early PSA tests and they can suggest otherwise ? And on top of that having patient like "topf" with family history and not testing - I am flabbergasted.

Jump to this post


Replies to "You pointed to many important facts that I myself discovered in past week of frantic research..."

I believe this is the ongoing evolution of prostate cancer diagnosis and treatment. If we wait three more years then whole new things will exist - maybe TULSA will be the new normal, maybe PSE tests will completely replace PSA tests. But we can't hold on to maybe's, we just focus on the methods today and in today's early detection it's PSA's at 50+.

I can tell you that three days prior to my PSA results that my urologist ordered, he did a digital (rectal) exam and said straight up "I feel no abnormalities other than you have a small prostate", then recall that it wasn't that long ago that a digital exam was the de-facto method to detect prostate cancer and if it still was then I'd be done for.

I think about Dennis Hopper, who died from metastatic prostate cancer in 2010. He likely missed his chance for early detection due to digital exams. Fast forward to 2025 and he would have had a PSA, PSE, biopsy, MRI, CT and more and might still be around. Further in the future, say 2030, it might be detectable in a urine sample and be 100% accurate. In 2035 it might be a simple pill prevents or fixes it.

We have what we have, and maybe the rules will change now that more < 50 folks are testing positive for PC.

Yes, you can imagine that I am very angry at how this came about. I was aware of my rosk and brought it up with three different PCPs, but they just followed some outdated guidance.

Now, partially I also blame myself fir not having made an appontment with an urologist. But if a doctor tells you not to worry, you like that advice and you don’t act.