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MAC infection treatment

MAC & Bronchiectasis | Last Active: Mar 27 7:15am | Replies (69)
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@namd

Hi Heather, this MAC is a right nuisance. I am going to insist on a 3 x weekly regimen this time as taking the big 3 on a daily basis was tough. I am starting probiotics tomorrow in preparation and will take Ondansetron to help with the nausea - it really helped.
Do you have Bronchiectasis? I hope your Bronch goes well. Let me know how you get on. My next appointment with my ID consultant is on 3rd April. I am more informed this time - I am sure you are too. Good luck. Take care, Niamh

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Replies to "Hi Heather, this MAC is a right nuisance. I am going to insist on a 3..."
heathert | @heathert | Mar 14 6:20pm

Hi Niamh,Thank you for your reply.
Yes I also have Bronchiectasis. I started ( wrongly as I had a caviity ) on 3 x a week big 3 meds, for around 5 years(and it was doing hardly anything but making me feel terrible)then my Dr realised that I should have been on daily instead, which I was on for another year along with arikayce inhaled( I was in the trial for Arikayce) which knocked it back enough for me to go off the meds, which I did for 3.5 years until now.
I actually found that 3 X a week was more difficult than daily however it could be because it was working so I felt better, so many unknowns with this nasty bug.
Will let you know how I go, and please do the same. Just be careful if you have a cavity you may need daily.
Yes I am starting probiotics again and buying ginger tea with licorice, if that doesn't work I will also ask for Ondansetron too.
I am definitely more informed this time thank goodness, last time it was so difficult.
Take care Heather

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