← Return to Diagnosing small bowel NETs with carcinoid syndrome

Discussion

Diagnosing small bowel NETs with carcinoid syndrome

Neuroendocrine Tumors (NETs) | Last Active: 11 hours ago | Replies (16)
Comment receiving replies
@blueskies10

Thank you. Most people here have said the same about CT's. It sounds like it isn't sensitive enough a lot of the time. Today I asked my internist for a PET. His answer was, that he doesn't order them. He said oncologists do, but I'd need a cancer diagnoses to see an oncologist. So we go around and around. Anyway, thanks again.

Jump to this post

Replies to "Thank you. Most people here have said the same about CT's. It sounds like it isn't..."
gustavo1975 | @gustavo1975 | 4 days ago

Uhh, I'm very sorry that you weren't authorized, it seems that the procedures are different in different countries.

And finally, I had a question: How would you get a cancer diagnosis if it hasn't been detected? That's why I understand that PET scans should be authorized. It doesn't make sense not to authorize the study, or it doesn't make sense for health reasons, but for economic reasons, of course.

I wish you the best of luck.

VIEW AND REPLY
ricki8 | @ricki8 | 1 day ago

This can be so frustrating. Without symptoms, but an instinct, I chose to pay for an MRI in March of 2023 (Canada only covers if symptoms found, for this test), and discovered a Stage 4 to liver cancer. I was told I had 2 weeks to live - oh fun! Everything kicked into action. After the usual PET scans, biopsy, I was given Lanreotide and now have frequent CT Scans (with contrast dye). It shows everything that's needed. I have one of the top Oncologists in Canada and I brought her the info. on Histotripsy (that she was unaware of). I had a very large (out of pocket) expense to have the procedure done in Seattle. It helped. Shrunk some and eradicated one tumor.
Bottom line: Everything changes, we change. Stay on top of this and communicate with an Oncologist.

VIEW AND REPLY