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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 5 hours ago | Replies (6313)Comment receiving replies
Welcome @charlie24, I see you also mentioned your husband is struggling with PMR since 2018 and hasn't been able to get off of prednisone. Mayo Clinic has some information on Charcot-Marie-Tooth disease here - https://www.mayoclinic.org/diseases-conditions/charcot-marie-tooth-disease/symptoms-causes/syc-20350517.
You might also want to look through the comments by other members on CMT. Here's a search link that lists member comments - https://connect.mayoclinic.org/search/comments/?search=Charcot%20Marie%20Tooth%20Disease.
Do you mind sharing what is the most difficult symptom for your husband to manage?
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The bones in his right foot are unstable, shifting, possibly fracturing, and the foot has no arch and stays very swollen. He was been diagnosed with peripheral neuropathy several years ago. It's difficult finding a doctor that treats charcot foot disease.