← Return to Stage 1 lobular breast cancer, anyone no treatment after surgery?

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@nanthony723

I was diagnosed with Stage 1 lobular cancer in January of 2023. I had a lumpectomy and had the sentinel node removed for biopsy, which showed no sign of cancer. I live in a rural area, so my radiation oncologist offered me a fairly new radiation treatment schedule that involves higher doses of radiation given every other day for just two weeks. I believe this radiation regime was created in Italy. I had no side effects from the radiation, in terms of burning or post radiation pain. My Oncotype Dx score was 12 and did not have chemo, as chemo has shown to be ineffective for lobular breast cancer. (Whew! Dodged that bullet!) I took Anastrozole for 14 months. The first year, I had no side effects. But starting at around 1 year, I became depressed and my joints really started to ache. Especially in my fingers and hips. I opted to quit taking it as quality of life is more important to me at this point in my life. (I'm 65.) I just had my two-year follow-up mammo and ultrasound and received the "all-clear." I have a breast MRI scheduled for June and, hopefully, I will receive another "all clear." I get anxious before all of those appointments, so I understand your concern about whether or not you made the right decision. I would recommend you go through with the radiation. It's quick and provides a bit more peace of mind. Good luck to you in your journey. Hugs, Nina

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Replies to "I was diagnosed with Stage 1 lobular cancer in January of 2023. I had a lumpectomy..."

My surgeon is not doing any Oncotype DX or gene testing. I'm stage one and 69.