@sheelah
Hello @lizadiane64
How sad that your family had to experience this tragedy. I have had many episodes of Convulsive Status Epilepticus but have been very fortunate. Usually the doctors were able to stop the seizures with drugs but I also had to be put into medically induced comas many times. My first and longest coma episode was in 1966-67 for 8 months.
I was in quite a few other induced coma's but they didn't last as long.
There's is also a condition known as S.U.DE.P. (Sudden Unexpected Death in Epilepsy. Many if not most doctors never discuss this usually always deadly condition with their patients or Status. I think physicians should be required to and give rescue medicine and to disclose this information to people with epilepsy who are at risk for either condition. Convulsive Status Epilepticus is a medical emergency requiring immediate medical intervention to stop the seizures. If someone is having a seizure and you're not familiar with their seizure pattern/history, they should be taken to a hospital if the seizure last more than five minutes. If someone is familiar with a persons seizure pattern/history and a seizure lasts more than one to two minutes, they also should be immediately taken to a hospital for medical intervention. The longer a seizure continues the less likely they will stop on there own.
My condolences,
Jake

I hope the following helps a little. There's nothing I can state in words to replace your son, but I do have empathy for your family. Myself having epilepsy, I have hope that with faith I will end up in a place where I no longer have to endure all the inconveniences, prejudice, etc. that comes with a life with seizures. I feel comfortable stating that your family might experience some peace of mind in hoping he is now truly happy. I wish I could say more. My best.