My sister was diagnosed today. Is the Mayo the best place for surgery.

Posted by reneemb @reneemb, Sep 29, 2023

My sister needs surgery for the cancer. It is in all 4 layers and hot the lung tissue. Is the Mayo the best place?

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I am very confident with Dr Thome!

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@lionsfan

I felt like I was in a great spot at Mayo for my stage 4, mostly localized EC. My cancer had spread only to one neighboring lymph node so it was more of stage 3 and 6 cm in size. I was on a clinical trial using Folfox 5 chemo and proton beam radiation. Unfortunately, Medicare called me a day before starting proton beam telling me they wouldn't cover it and only cover photon beam. I decided to go ahead with photon, but developed pericarditis after 4 sessions. After escalating to Medicare, they finally approved the proton beam, which worked well with no side major effects, just a bit of fatigue. My chemo/radiation was so successful, only very tiny micro cells of cancer remained. I then had IVOR LEWIS surgery done to remove the damaged area and it was very successful, with clear margins and full recovery. Dr. Wigle and his team were great through the entire process. I always felt comfortable and confident with their team. Don't get me wrong though, recovery was tough. I was in the hospital for 10 days and on a feeding tube at home for a month. I strongly suggest your nursing team provide thorough training on feeding and medicine delivery if you're the caretaker. Also, assuming your insurance covers it, have your at home nurse meet you at home at time of arrival. This will make your transition more productive and less stressful. I'm 4 months out from surgery and my first scan showed no signs of recurrence. It's extremely early, but I'm optimistic I'll be cured in the long run. For additional assurance, I'm doing Optdivo immunotherapy for a year which decreases odds of recurrence. I highly recommend Dr. Wigle and the Mayo team. Remember though, if you have a long drive to get there, you'll want to ensure your local provider is totally in synch with your follow up care plan too. They can play a big part in your recovery. Best thoughts to you and your sister. Send me a note privately if you have any questions. Thanks Geoff

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I would like more info. I believe you know Guy H. He is my cuzsin

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@traskdon72

I would like more info. I believe you know Guy H. He is my cuzsin

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@traskdon72: Hi! Are you Guy Hamilton’s relative? I had lunch in the Cafe with him this week.
Let me know if the world is really this small. 🙂 Bette

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@traskdon72

I would like more info. I believe you know Guy H. He is my cuzsin

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Hi, I don't know Guy, but I'm more than happy to chat. Reach out to me privately on this portal and we'll talk.

Thanks Geoff

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