@roch and @colleenyoung
Thank you for the helpful information. I have requested an appt at Jax-Urology and at Rochester-Urology, now the request is with Nephrology.
I understand your positions and they are logical.
There are constraints which I have not detailed which are inputs to my decision making.
Ideally, we would have an appt and this would be a more organized process.
She is not a minor, she is 18. She is a Senior in High School. She is sick and continues to be sick while Urologist after Urologist pushes her out the door, including at Mayo trying to get an appt.
Her case is "atypical" , If I knew what was wrong with her then she would not be sick and this would be a non-issue. Gentle explaining the following....
No, this is not acute life threatening emergency like a heart attack, however this is a "life threatening emergency" for her as her "atypical" kidney infection/strange and concerning kidney stones/specimens, kidney pain, ureter/urine blockages and stabbing in her ureter, daily pain and suffering health issues are threatening her school and her life, and mine, as her caregiver. Her quality of life is painfully, rapidly deteriorating. While the High School and tutoring are helping, as long as her health permits and right now her absences and illness make a satisfactory GPA and graduation questionable, her opportunity to go to college is very questionable, she has a learner's permit but she is not healthy to drive, she can barely make it to school, she has no extracurricular activities, she has held no job and she misses out on many, many social activities. She is strong and has good friendships but illness robs a young person of their social outlets, her self-esteem and her dreams. Being a semi-functioning young adult is helpful but not acceptable life when there has to be a reason. I am caring for her 75% and my work-life is impacted, no I am not able to take Family Medical Leave right now, due personal constraints. She just can't miss more school days therefore we have to go when she is on holiday from school and we will wait. We are praying they will see her and look at her whole body and provide a diagnosis and solutions. Thanks for understanding,