← Return to Dysautonomia is ruining my life, no help from doctors

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@beccamarieg

I was having tremors in the beginning. Also would go into bradycardia when going to sleep. "Seizure like activity" was what my PCP has told me.
What you are experiencing sounds terrible. I am sorry you are going through this.
I wished we were given better options to actually live a better life.
Because all I am doing is surviving, nothing else.

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Replies to "I was having tremors in the beginning. Also would go into bradycardia when going to sleep...."

That’s all you can do. It’s frustrating when your hands shake so bad you can’t cut up your food and feed yourself. I have to carry a cup with a lid otherwise I spill it or I grip the cup so hard I break it and the drink goes everywhere. Bottled water has to have a lid that you squeeze no lid uhh. I sat down and listed everything each one causes motor neuropathy, sensory neuropathy, SFN, and dysautonomia and cardiac autonomic neuropathy. The kicker for me is the severe seizures that I hav in my sleep waking up with blood all over me and the &act it causes paralysis. No neurologist told me about paralysis.
My seizures are tonicclonic seizures.