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Thanks for your post 54pontiac..
I was just diagnosed with PMR and I was wondering if you could share a little bit more of your journey. My iron was also very low. I have read that PMR can cause your iron to be low.
I was diagnosed three months ago and they started me on a low-dose prednisone of 4 mg. My pain was gone by the next day. I feel lucky that it’s been controlled with such a low dose. I read so many stories about people starting at such a high dose when diagnosed. I saw my rheumatologist a couple days ago and he told me I could try to wean down to 2 mg which I did try and I had mild discomfort so now I’m trying 3 mg to see how that works.
My question for you is I was just wondering how long you were on prednisone and what dose they started you at and how long before your PMR went into remission.
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I was started on 10 mg and it took several weeks for my inflammation to disappear. Then I felt like superwoman. After a few more weeks, the rheumatologist said I should start tapering at my own pace. I chose the dead slow taper which is available on many lists. Basically I went down 1 mg every month, alternating days with the new dose, until I hit 5 mg. Then I went down .5 mg a month until I got to 0. That took about 15 months. The only trouble I had was going to 1.5 when my back acted up for a few days. Then one knee. But now I’ve been off for 2 months with no flares. I am not the woman I once was, but I feel 70 (my real age) instead of 100 (with PMR). If I were you I’d cut the pills in half and go down .5 per month (or longer) and see if that works better. I am not a doctor, but from what I’ve read of others’ experiences, it seems the slower the better. Good luck!