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@jlarray

My first symptoms of mac/bronchiectasis appeared when I was 37, I had had no previous pulmonary issues. My children were aged 4 and 1 at the time, I can relate to your situation! It was two and half years before I got diagnosed and started the big three but the infection didn't clear with the treatment. I was in the aricayce trial but stopped it early because of hearing loss.
What's helped me (improved my symptoms) has been exercise,nebulized saline, and postural drainage. They helped me cough up plugs which I couldn't do without these airway clearance techniques.
I'll be 54 next month. I haven't been on the big 3 for the last 6 years. Before that I was on and off them. My catacans are mostly stable. I had the right middle lobe removed, which was the most damaged part of my lungs, I'm not sure how much of an impact this has had on my situation. For now at least, I'm doing okay and I feel good. I hope this is helpful to you

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Replies to "My first symptoms of mac/bronchiectasis appeared when I was 37, I had had no previous pulmonary..."

That’s very helpful, thank you. Your situation is very similar , I discovered MAC last year , with 2 children aged 2 and a newborn, so I was really shocked. I also have a middle lobe (in addition to lingula) that is very damaged and we are discussing about surgery… I’m not so convinced of Surgery because I fear complications, but it’s an option. i’m going to try nebulized amikacin (not arikayce) but I’m afraid of hearing issues too.. I don't know if I will ever get rid of Mac… Thanks again for your testimony.