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Dysautonomia is ruining my life, no help from doctors
Autoimmune Diseases | Last Active: Mar 16 7:10pm | Replies (39)Comment receiving replies
Do you have the seizures it causes? I do when I go into bradycardia in my sleep I bit my tongue. Woke up with blood all over my face. This is caused by the dysautonomia. Which also causes paralysis and you can die. My electrophysiologist has all ready told me what to expect. Most people live 8 years from the time diagnosed. I am on year five and tts horrible. There’s nothing that can be done,
Replies to "Do you have the seizures it causes? I do when I go into bradycardia in my..."
Hi,
I wondered how you were getting on, my thoughts are with you.
I don't think any timeline can be attributed to Dysautonomia, as it pretty much depends on when some bright spark diagnoses it and doesn't pass it over, or which particular disease it is within Dysautonomia and how quickly it developes. My health records show the first signs 27 years ago when it was just starting for me. A great pitty nobody recognised it as Dysautonomia back then or was it even a recognised diseaes back then. I guess it doesn't matter now as it is here and now I'm dealing with it.
Take care.
Cheers
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I was having tremors in the beginning. Also would go into bradycardia when going to sleep. "Seizure like activity" was what my PCP has told me.
What you are experiencing sounds terrible. I am sorry you are going through this.
I wished we were given better options to actually live a better life.
Because all I am doing is surviving, nothing else.