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Just diagnosed with tortuous colon

Digestive Health | Last Active: 3 days ago | Replies (49)

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@loconnor1

Most of you are mentioning weight loss associated with tortuous colon. I was informed that I have the condition after my third routine colonoscopy-- this time, the doctor said that everything was fine other than "the tortuous colon which you're aware of". Well.....NOPE! I had never been told I had a toruous colon, and had no idea what that even meant! So, about 20 years and 2 colonoscopies later, I'm finally told about my condition (grrrrrr!). I am always constipated and have many of the symptoms many of you have described-- except I am not losing weight- I'm having an extremely hard time getting the scale to budge. This is very disheartening because I've begun exercising regularly and eating much healthier (mainly raw diet), and since I began this regimen nearly a month ago, I have not lost an ounce. I haven't had a BM in nearly a week this time, but really having no other symptoms other than mild discomfort. But the lack of weight loss is depressing to say the least. I'm at a healthy weight (according to the BMI chart) but I would like to lose about 10 pounds to be at the weight where I feel my best. I'm 63 years old. If this is what aging is like, I don't like it one bit!!!! Has anyone else had the weight gain or weight plateau issue? I feel pretty desperate at this point. A number on the scale is instant gratification for all of my hard work- I need that little boost!

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Replies to "Most of you are mentioning weight loss associated with tortuous colon. I was informed that I..."

Hello Loconner. I am posting for the first time in this group, because your post caught my attention. I have a tortuous colon (likely congenital) with increasing diverticulum and two recent infections, combined with a biliary and stomach backup and bile reflux with stomach damage, likely resulting from the back-pressure of tortuous colon. My blood sugar levels and my post gall bladder situation (long since gone) are players. It puts my pancreas and liver at risk. This has made it difficult to keep my weight down despite low carb diet and exercise. While my weight is good now (lost 15 pound) and holding, it is because I have been so nauseated. So my PCP has me carry ondansetron. This helps me followthrough with a cooked diet, high liquids, limited meat, etc. All this was not enough. So my PCP has me taking miralax 2/day. Combined with the ondansetron and diet, this was a game changer for my pain levels and bowel motility. Now I have just started adding Metamucil capsules to address the diverticulum. I dont want to lose my bowel or develop cancer. The future is yet unknown. Keep your head up. Its a circular process, and will take time for inflamed areas to reduce, and for the gut microbiome to recover. You have to avoid obstruction and diabetes! Good luck with this complex issue. Hopefully this post has helped. Keep conversations going.