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@ropnrose

I received my first Actemra infusion in January 2025. I started feeling better about 3 weeks after it. I get them every 4 weeks. I can honestly say that I feel GREAT now. Still wake up with minor aches, but they're manageable. I am now on 9 mg. of pred. will step down to 8 in 2 weeks. I feel as good as I've felt, since before PMR. I was always VERY active. I have 3 golf t-times this week. I've riden my e-bike anywhere from 8-24 miles. I feel like I'm 'back'.

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Replies to "I received my first Actemra infusion in January 2025. I started feeling better about 3 weeks..."

I'm at a similar point in my treatment. I started Actemra injections in August 2024. I'll start taking 6 mg of prednisone tomorrow. The difference between 60 mg and less than 10 is really amazing. I'm like you, where I feel as good as I did before PMR, which was almost 2 years ago. I'm jogging 30 minutes every other day mixed in with walking. Plus I'm sleeping really well, which wasn't happening since the start of PMR and GCA.