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New - Lightheadedness with Spinal Stenosis

Spine Health | Last Active: Mar 17 7:02pm | Replies (13)

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@jenniferhunter

@juljul Hello and welcome to Connect. I realize this is a big change for you into new territory. 2 weeks isn't very long to wait. Just be careful so you don't fall. It took me 2 years to find a surgeon willing to help me because several missed the proper diagnosis, and I did OK. My surgery gave me my life back. I did have some spinal cord compression, but without nerve root compression. I also had retrolisthesis of C5 over C6 and straightening of the lordotic curve due to muscle spasms. I also have thoracic outlet syndrome that makes one side of my neck too tight, and that sets me up for muscle spasms that cause some rotation of my vertebrae. When C1 & C2 were getting rotated, it caused dizziness and some vertigo. That happens because rotation stretches the vertebral arteries that run inside on each side of the cervical vertebrae, and that is part of the blood supply to the brain.

Will you be seeking a second opinion somewhere else? That was recommended to me by my doctor.

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Replies to "@juljul Hello and welcome to Connect. I realize this is a big change for you into..."

Hi Jennifer - Thank you for sharing your experience. I’m not sure of all the details of my situation until I talk to the neurosurgeon. Did you have lightheadedness strictly from the rotation? I haven’t seen that mentioned in my mri report.
I feel like this is now halting my life and after three months of PT not working and trying to get appts I’m scared and frustrated. I’m starting the process to take leave from work. I work from home and for the last two months spend most the day lying down or trying to keep it together enough to be present for tele conf calls.
I have appts with a neurologist on 3/17, a neurosurgeon 3/25, and a second neurosurgeon 4/3.
The first neurosurgeon I’m seeing is affiliated with a local university and is quite reputable. I’m hopeful