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Post Polio Syndrome

Brain & Nervous System | Last Active: Mar 15 5:47pm | Replies (27)

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@foundryrat743

I have had so many neurological ailments, since I was born, that each day of my life, it seems like I’ve been challenged, some way or the other, neurologically! I’ve had a whole gamut of neurologists and neurosurgeons to deal with, over a long life span, of nearly 80 years. it takes discipline, fortitude, determination, patience, and empathy, along with the ability to deal with a lot of pain, at times, in order to cope! I caught non-paralytic polio, before the SALK vaccine/sugar cube remedies were introduced. I had trouble walking, and got extreme stiffness and pain, in my leg muscles, as a little boy, around 9 years old, or so, We lived in a small town in Nebraska, and the local family doctor, a friend of the family, noticed my symptoms. i stumbled and fell down at times, seemingly clumsy! I’ll never forget when they put metal braces on my legs, for a while, and then the stretching exercises they put me through, where, especially the muscles in the back of my legs, became so sore-it was like a burning pain. I remember taking the sugar cube vaccines, around a year, or two later. Perhaps that prevented me from getting more severe polio. Other children used to make fun of me, when I would walk, because it was not a normal gait! My balance has always been somewhat compromised, from birth, because of a birth defect, where an artery in my brain was pressing in causing cranial nerve root compression, affecting balance etc. so I had a mild Ataxic gait. Over the years, I’ve had several bad falls, with concussions! I have had a couple grand mal seizures, and was put on Depakote for that! 7 years ago, I was diagnosed with Parkinson’s Disease, after suffering for nearly 8 years, of mild symptoms, like numbness, peripheral neuropathy, smelling and tasting problems, freezing episodes, slow walking, and a rolling pill tremor of my left hand, at times. Upon examination by a neurologist, I was found to have cogwheel rigidity signs, slow, ataxic walking, and the tremor, resulting in the Parkinson’s Disease diagnosis! My Neurologist is a Parkinson’s movement disorder specialist, and has helped me a lot! Where the post polio syndrome fits in with all my various symptoms, I am not sure about, because I have so many neurological signs and symptoms! I have brought the subject up with my neurologist, and he is mostly interested in helping me to just keep ambulating and be able to cope with advancing Parkinson’s Disease symptoms! I sure can relate to muscle fatigue, weakness, and ambulation problems! Good luck to you!! Patience is a virtue!

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Replies to "I have had so many neurological ailments, since I was born, that each day of my..."

They treated me fo Parkinson's for nearly 10 years.
A good neurologist found it on an E.M.G.