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Low iron levels and PMR

Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (51)

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Thanks megz. It's hard to know what's the best thing to do. I did show my own doctor the blood results and she said I needed to supplement and wrote a prescription for it. So I'm not sure which way to go. I may try them to see if I feel any better. My rhumatologist wants me to test iron levels again in six weeks which seems too long to me. Iron deficiency, as I mentioned, can cause a lot of the symptoms I've got.

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Replies to "Thanks megz. It's hard to know what's the best thing to do. I did show my..."

@frenchfrank51
I totally agree re symptoms can be very much the same as critically low Iron Saturation. Do you know your Iron Saturation number? That's the critically one. We'll feel lousy with low iron in general but it's the iron saturation that'll cause the horrific pain and other critical problems for us. What I did was do a Brave Search engine "search" for "how low does my iron saturation need to be to cause serious pain or other problems, and give ranges and what effects they have".
That showed me the different "categories" of ranges and what each causes. Might give you more info. I feel horrible too but just started 15mg Pred 2 days ago. Go for GCA Ultrasound tomorrow. If you're on 60mg Prednisone that in itself can make us feel lousy on top of PMR symptoms so I share your concerns. Personally, I research everything myself. Then I ask questions. Many Drs are so busy they can't possibly keep up with us as well as we can. I hope you feel better fast too. This pain is brutal and unrelenting.