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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 hours ago | Replies (6295)

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@scain

Thanks for the info. I do have an emg and NCS tests scheduled for next week. Also blood work to do. I think the only thing that worried me after my initial appointment with the neurologist is that she said when I was in my way out of the office to tell her asst. to make the follow up appt. for 6 mos! I felt that after these tests were completed we would have an appt. To talk about them. I mean how helpful can these tests be to her at that late date. I mean it is me who needs some relief. Is that she doesn't have any relief to give me or that the tests won't give her any new info. I find this whole diagnosis as confusing and frustrating as many if you do who write in. I did find the names of neurologists in Boston who specialize in neuropathy and wonder if enough people who write in here had better experiences with seeing them. If course as a lot of us have mobility issues including me it will involve me getting help with parking walking some distance etc. Is it worth it if no one has answers. It is sort of a mess at best. I guess u will get the tests done as asked and give her a chance to respond and if not I will probably see the specialist. Well I guess I am just thinking out loud at this point. It's late and I Am up with annoying pins and needles in my foot keeping me awake. Thanks again. Susan

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Replies to "Thanks for the info. I do have an emg and NCS tests scheduled for next week...."

Hi Susan (@scain),
As I read your reply I really, really feel your frustration, and I don't blame you. That said, I don't believe you are necessarily being put off by your doctor. There just aren't enough neurologists to meet the demand, and they spend so much of their day writing Client Notes which, from what I can gather, must be expressed in detail ranging from the sublime to the ridiculous in order to justify reimbursement by insurance.
I also wonder (but haven't thought to ask) if they might be affording you time to see if over a few months your symptoms change or worsen or even improve. This condition acts like it has too many moving parts and they all seem to be well oiled!
Unless I am genuinely mistreated, I make it a point to be sure my interactions with the office staff are always kind and gentle and patient. They do want to help us as much as we want them to. I know it's hard when you're in pain basically 24/7/365.
By the way, I had a bad night last night with my feet, too! Grrr...
Barb
Barb