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← Return to Mestinon for Long Covid
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Thankyou! I will definitely get another lymes test. I know tests miss things all of the time so I will get multiple if I can. I am the same as you.I have had something for a long time. Even before I was diagnosed with Thyroid disease. When I was young I was always tired and it is still that way. It is not a normal tired, but something is wrong with my immune system. My gums have always bled a ton since I was very young, but I have never had a cavity in my life. The dentists never understood why it was so bad. I must have tons of inflammation throughout my body constantly. I have also had to exercise all of the time and be out in the sun/fresh air all of the time. Resting for too long seems to make me sick. It is something strange. It is so tough because Autoimmune, Lymes, EBV and Long Covid all kind of mimic each other. I am praying for you and hope you find answers and start feeling Better soon.
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A good diagnostic for tick borne diseases is Igenex. Here’s a link: https://igenex.com/test-directory/product/co-infection-panel-8i/
Also MCAS is directly linked to SIBO gut issues. Maybe try herbal supplements to help with this since your body doesn’t tolerate antibiotics. Oregano (ADP), Allicin are both used for SIBO/IMO, and Neem is also used I believe for SIFO.
I used Berberine because my body doesn’t tolerate most herbals (I’m opposite where my body tolerates antibiotics better than herbals). But Berberine helped me in combination with Cinnamon and Cloves.
However for me, Rifaximin moved the needle the most. But if I could have taken the Oregano and Allicin I’m sure these would have been better!
What I found was when my gut was addressed all my other issues calmed down A LOT! MCAS, energy, twitching, weakness, swelling, bloating everything was better…